Back in 1984 (1 year old) I was diagnosed and treated for Lambdoid Synostosis w/double fusion. Everything was a success and I have never had any complications. When I turned 6 I woke up one morning to find blood in my underwear, I had started my period, I knew this because I had seen my mother have hers and we always discussed the facts of womanhood since early on. Of course, it was way too soon for this to happen and I went to my pediatrician who then referred me to a pediatric gynecologist. I ...
Hello Y’all!! The birth my best friends’ baby prompted me to want to learn more about my cranio condition/surgery as a kid, and my research led me to this site. I’ve talked more in depth about it with my folks to gather as much info as they can remember, and I contacted my pediatrician for my medical record. In a week I will go and actually look at my file. J OK, so from what my parents have said, and from what the nurse read from my file I was diagnosed with fusion of both Lambdoid sutures as a ...
Im very new to all of this and a young mom, my son has Craniosynostosis . his top part of his head has closed completely (sagittal suture , anterior fontanelle and a very small posterior fontanelle.) he is only 2months old today and am very nervous about all of this i am more worried about the blood transfusion and what hospital to attend to in S.A . I know my sons shape of his head isn't drastically out of proportion but they want me to wait another 3months for the op! by then they say ...
Okay, so I have remained as cool as a cucumber this past year post-op. Mikey has been doing pretty well. He is still behind on most milestones. He is currently seeing a physical therapist, vision therapist, and speech therapist. He has yet to walk on his own, but can move around while holding on to things. He is a very happy baby still, but has recently begun to pull at his hair again. Mainly on the back of his head. This reminds me of the first time we noticed it, and began our cranio journey ...
Hello, my name is Margaret Cole. I'm new to this site. I have a 10 month old son that was diagnosed with Craniosynostosis. His name is Zayden. I'm a young mom and i'm scared to death. Hes the happiest baby ever. He goes May 27 to see what our next step is. My husband and I are scared to death..
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