Hi, I just dont undersand how a ridge could come back? How come people have more than one surgery if they release the metopic suture? My son is scheduled to have surgery at 6 1/2 months old for Metopic Cranio and I am terrified. What are the risks/complications?
My daughter was just diagnosed with lambdoid craniosynostostis on the 4th of this month. My world is upside down right now. we are waiting for a surgery date.. i really need some support! shell be a year old this 20th. Please someone get back to me, its nice to see that im not the only one going through this!
Aspen had surgery on Friday and is home and doing well. She was diagnosed with Sagittal Craniosynostosis in April, at just 2 months old. Because we caught it so early we were able to do the endoscopic surgery. I am not giving her much pain medication because she doesn't seem to be in pain, an also she gags every time I give it to her. She also gags if anything goes in her mouth other than my boob. Last night we spent some time in the ER because of the gagging but they do not think it is from surgery,
Yesterday, we took our son Daniel for his one year post CVR control (it was actually 18 months since his operation). We were told by the neuro surgeon and plastic surgeon that everything was fine and they were really pleased wiht the results and how the reconstruction.... a big sigh of relief! We were also showed the MR scan pictures of Daniel before and a year after and the difference is fantastic. Daniel has one more check up at 2 years post op and then (hopefully) he will be discharged! We are
I put 10 new pics up of before and after surgery. Some may be a little fuzzy (sorry) because they are pictures of pictures taken 30 years ago. They didn't stay in order for some reason...but they are captioned.