Janet

The night before her surgery I didn’t sleep more than 2 hours, I was so nervous. We had to set the alarm for 4:30am to leave the house by 5 to get to the hospital for 6.
We got to the hospital about 5:30 because the traffic was so light. We registered on the first floor then they sent us up to the 6^th floor. We met with a nurse who asked us a ton of questions and took her vitals. Everything was perfect so we were sent to the 2^nd floor.
When we got into the waiting area, there were ...

I can see the light at the end of the tunnel finally. We heard from sick kids today, we have an appointment on Sept 23^rd (3 days before her 4^th year post op) to see Dr. Phillips. The surgery is going to be booked for some time in October. I have such mixed emotions right now, I have waited since December 2^nd 2010 for this. I booked her pre-op check up with our family doctor.
We have so many questions about the actual surgery and the implants. I have been trying to do research, but I can’t ...

I joined CK over 4 years ago scared as hell, I thought that Fiona was the only child in the world that had cranio. I was lost and alone. CK quickly became my second family. I found out Dec 2010 that Fiona needed a second surgery. I don't have the date yet and I have no clue when it's going to happen. I feel really bitter about it. We were told at the original appt that needing a second surgery is so rare, 2% of cases....and Dr Phillips has NEVER had to re-do a CVR. I'm happy that she doesn't need ...