The night before her surgery I didnít sleep more than 2 hours, I was so nervous. We had to set the alarm for 4:30am to leave the house by 5 to get to the hospital for 6.
We got to the hospital about 5:30 because the traffic was so light. We registered on the first floor then they sent us up to the 6th floor. We met with a nurse who asked us a ton of questions and took her vitals. Everything was perfect so we were sent to the 2nd floor.
When we got into the waiting area, there were
Updated 10-25-2011 at 01:30 PM by Janet
I can see the light at the end of the tunnel finally. We heard from sick kids today, we have an appointment on Sept 23rd (3 days before her 4th year post op) to see Dr. Phillips. The surgery is going to be booked for some time in October. I have such mixed emotions right now, I have waited since December 2nd 2010 for this. I booked her pre-op check up with our family doctor.
We have so many questions about the actual surgery and the implants. I have been trying to do research, but I canít
Updated 08-24-2011 at 04:38 PM by Janet
I joined CK over 4 years ago scared as hell, I thought that Fiona was the only child in the world that had cranio. I was lost and alone. CK quickly became my second family. I found out Dec 2010 that Fiona needed a second surgery. I don't have the date yet and I have no clue when it's going to happen. I feel really bitter about it. We were told at the original appt that needing a second surgery is so rare, 2% of cases....and Dr Phillips has NEVER had to re-do a CVR. I'm happy that she doesn't need
Updated 08-08-2011 at 01:33 PM by Janet