Aspen had surgery on Friday and is home and doing well. She was diagnosed with Sagittal Craniosynostosis in April, at just 2 months old. Because we caught it so early we were able to do the endoscopic surgery. I am not giving her much pain medication because she doesn't seem to be in pain, an also she gags every time I give it to her. She also gags if anything goes in her mouth other than my boob. Last night we spent some time in the ER because of the gagging but they do not think it is from surgery, ...
Yesterday, we took our son Daniel for his one year post CVR control (it was actually 18 months since his operation). We were told by the neuro surgeon and plastic surgeon that everything was fine and they were really pleased wiht the results and how the reconstruction.... a big sigh of relief! We were also showed the MR scan pictures of Daniel before and a year after and the difference is fantastic. Daniel has one more check up at 2 years post op and then (hopefully) he will be discharged! We are ...
I put 10 new pics up of before and after surgery. Some may be a little fuzzy (sorry) because they are pictures of pictures taken 30 years ago. They didn't stay in order for some reason...but they are captioned.
Back in 1984 (1 year old) I was diagnosed and treated for Lambdoid Synostosis w/double fusion. Everything was a success and I have never had any complications. When I turned 6 I woke up one morning to find blood in my underwear, I had started my period, I knew this because I had seen my mother have hers and we always discussed the facts of womanhood since early on. Of course, it was way too soon for this to happen and I went to my pediatrician who then referred me to a pediatric gynecologist. I ...
Hello Y’all!! The birth my best friends’ baby prompted me to want to learn more about my cranio condition/surgery as a kid, and my research led me to this site. I’ve talked more in depth about it with my folks to gather as much info as they can remember, and I contacted my pediatrician for my medical record. In a week I will go and actually look at my file. J OK, so from what my parents have said, and from what the nurse read from my file I was diagnosed with fusion of both Lambdoid sutures as a ...
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