Hi, AJ had CVR on Jan 11 2012 and is now over three months post op. He is almost a year now but was a month premature. He is still not walking or crawling or getting from tummy to sitting position on his own. His pediatrician now thinks that he might have low muscles tone. I have been trying to read about low muscle tone and land up with a term called hypotonia. I read that it might be a neurological problem. Can this be related to the craniosynostosis?
Surgery was a success..WOOHOO!! and his recovery is amazing. Its crazy just how fast they rebound. The doctors didn't shave his head so you can't even see the incision under his head of hair and he is doing SOOO good!!! Although to me he looks so much different (sometimes I have to hold back tears and remind myself that yes he doesn't look the same but he now looks the way God meant him to be and this was all for the best), he looks amazing!!! Surgery was 1 week and 4 days ago and ...
Hi everyone my sons surgery is coming up on April 23rd. Reading peoples posts about metopics I have noticed a lot of people had to do more than one surgery to fill in the holes. IS this more common than not? I was told by my doctor that he will only need one surgery. Any info will help. Thanks
I have never felt so helpless in my life. When I became a mom, I knew there would be tough times. I knew my son would fall on his bike and get his heart broken by a girl at some point. When I saw how active he was from the start, even in the womb (hello, bruised ribs), I knew there would be stitches and pain. I had no idea that the pain and stitches would come before he turned 4 months old. I absolutely hate this! As a new mom, I already feel like I'm doing everything wrong all the time anyway. ...
Mary was born on January 11th of this year. We were so excited to have our little girl finally in the world with us... She was a C-Section and everything went smoothly (born with a full head of hair, and no...I had no heartburn!) That night my husband decided to go home for some sleep and I would do the same and we sent her to the nursery for a few hours (we were hesitant to do this because we didn't want her to be away from us :) THANK GOD WE DID. She turned blue! She was rushed to the NICU and ...
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