closed soft spot

[avah'smom]

Hi ive posted on the other boards. Im trying to figure out whats going on with my daughter. She has had a ct scan and they said her metatopic suture is closed and she has a closed anterior fontanelle. she is 5 months. her head is perfectly round and no ridges... so im wondering if she has a syndrome that could have caused this. anybody know anything about microcephaly or any other disorder that causes the anterior fontanelle to completely close??

[athenamacd]

We are going through the exact same thing. Although my daughters isn't completely closed. Has her head been growing? My daughter is almost 5 months and has had no head growth. Her head also has been growing into a point on top. We see the neurosurgeon on May 6th and I have e-mailed Dr. Fearon in Dallas about this. I'll let you know if we get answers before you do. Good luck!

[avah'smom]

her has grown but not much. it was 41 1/2 cm at 4 months and only 42cm at 5 months. but her head shape is fine. thats the part i dont understand... please let me know if you find out anything. can anyone e-mail dr. fearon with a question?

[athenamacd]

Yes, that is what everyone has told me. They say he's good at diagnosing over e-mail and usually gets back pretty quickly. i e-mailed him monday so should hopefully hear back soon. I will definately let you know what he says. His email is cranio700@aol.com

[avah'smom]

I e-mailed that dr. he just sent me a message back saying as long as her head isnt forming a triangle on top then she prob wont require surgery. he didnt say much about the soft spot though. have you heard from him yet?

[athenamacd]

No, I haven't. That is concerning....maybe he thinks I have something to worry about and is looking further into it. I don't know.....our daughters head is forming a triangle on top and I sent him pictures of that along with her ct scan.

[athenamacd]

Just wanted to let you know that he emailed me back and said he doesn't think our little girl has any craniofacial issues.