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infinity
10-09-2006, 09:15 PM
hello everyone,

well, its all over - and many thanks to your prayers and thoughts. i took a while to write bc my computer was down when i got home from the hospital, and then the little one really wasnt sleeping well - so neither was i !

ok, so here it goes - the wait from the time we got to the hospital to the time i carried him into the operating room was 4 hours! once i carried him in, i watched them give him the anasthesia (dont have the energy to spell that word correctly) and then my husband and i grabbed a bite (the least conversational meal we ever had in the 13 years weve known eachother) and then to my surprise, we both fell asleep in the waiting room! i had just grabbed a coffee when the dr came out to tell us it all went well. my son had the extended vertex craniotomy done for his sagittal. we were grateful he was young enough not to need the PI type. He looked so cute all wrapped up in the bandages, and the first thought that came to my mind when i first saw him was that he was my brave little boy, and i just kept watching his eyes and listening to his soft, weak cry.

i stayed with him overnight into the next morning, and of course he got up alot - and the chair i tried to sleep in kept on folding up on me! but that morning, to my delight, he woke up, rolled right over on his stomach like he always does, and had a beautiful smile on his face. it was the cutest thing to see - iv's, bandages and all, he was happy, but just for a few seconds until he realized he wasnt comfortable! i enjoyed it notheless, and i was so relieved to see him smile.

he was released that day from the hospital, and is now home to recover.
he did have trouble keeping his formula and food down, but he is doing ok now. the sleep could be better, but i am sure everytime he rolls over to move positions, the discomfort must wake him up. other than that, he is almost back to the old routine, and like you all said, they sure do bounce back fast! Thanks again for the support, i thought you would all appreciate my story. i will keep posting and reading on this message board, bc like you all, this will always be a part of my life.

laurensmom
10-09-2006, 09:23 PM
Thank you for the update..it made me tear up...the memories are all to fresh for me. I'm so glad everything went well and he's back in the house safe and sound with mommy and daddy. Welcome to the other side!! I have to warn you because I was warned as well..They get well too soon and are running around quicker than we would like them to.

infinity
10-09-2006, 09:33 PM
hey, you must be on line now, you wrote a reply so fast! you are right about them wanting to just "go". he makes me so nervous sometimes! and, he does have a 3 year old sister, i feel bad i didnt mention her in the message i just wrote. she is handling this whole thing so well, i am proud of her too. i have just a guilt trip running over her bc i havent been able to give her the attention i want to bc of the little one. we all do what we can though. thanks for checking in. dont worry, photos are on the way, when i get around to it!!!

frankiesmom
10-10-2006, 09:53 AM
Hi Patricks mom! So glad to hear all went well! Please keep updating us.
Wondering, i think in a prior email you said you were in new york, am i correct? Where was the surgery? My son' s will be at mt sinai...

KALEMSMOM
10-10-2006, 10:06 PM
Thanks for the update. I am sooo happy to hear everything went well and that you are all home resting.

Katie
10-10-2006, 11:46 PM
My heart melted at the image of him rolling over and smiling when he woke up :adore thank you fo rht eupdate, I'm glad all went well :hugg

infinity
10-11-2006, 11:17 PM
to frankiesmom -

yep, i am from ny. i have to change my title info to include that! if you got any questions, or would like some info, just let me know, but i am sure you are all set up with great people at mt sinai.

Mom2William
10-12-2006, 07:52 AM
I am so glad that all went well for you!

Jules
10-12-2006, 10:59 AM
Good news! Welcome to other side. :cheer

Rhonda O
10-12-2006, 01:18 PM
I am so glad that everything went well. What a strong little guy you have! Welcome to the other side!

Jennifer
10-12-2006, 06:40 PM
That four hour wait must have been horrible....I thought an hour was bad! I'm glad he is doing well and you are all back at home!

How are you all feeling? Have you been able to get some time to yourself now that it is over?

infinity
10-12-2006, 09:27 PM
hi jennifer,

the four hours killed us! but our little guy had a grand old time smiling at everyone. i think he cheered everyone up in the waiting area. i couldnt believe he didnt fuss at all considering his last milk bottle was at 1am that morning, and he wasnt brought in until 11am!! i did fill him up good that night though, but didnt expect it to work that well!

my nights are not as good as they were bc he gets up at least 2 times a night, and in the beginning it was every 2 hours i guess bc of the discomfort. but things are definitely getting better. everyone is right, the kids are stronger than the parents!

i sent you the photos, see what you can do. thanks.

mom2mykidos3
10-14-2006, 04:05 PM
Congrats. I am glad all went well. This little ones are so strong!!!