View Full Version : Hello
10-05-2006, 11:48 PM
Hi. My name is Julie. My son, Gabe, just celebrated his 2nd birthday. We found out Gabe had sagital synostosis the day after he waas born. December 23rd will be the 2nd aniversary of his surgery. I can't help but feel blessed. I want to be able to share our experience with other parents like us, so that they don't feel lost and alone. The first few months of Gabe's life were scary for us. I know that fear all to well. No one should have to go it alone. That is why I found this site and signed on.
Two years later, Gabe is thriving. We are blessed.
10-06-2006, 01:13 AM
Welcome to Cranio Kids Jules! Thank you for joining and sharing your experience with other parents. We have many parents here who are new to the emorional roller coaster of craniosynostosis and it is comforting for them to know that our kids do wonderfully through this! :hugg
PS- I moved your post from the "how did you find us" thread in to it's own thread so that more people would see it, hope that's OK.
10-06-2006, 01:35 AM
Welcome! I'm glad you've found us. I'm glad to here all is going well w/ Gabe- that's reassuring to those just being diagnosed, or new to the 'journey'. (And some of us who are a bit further along in it :giggle)
Thanks for joining....it's quite a group of friends you've found!
10-06-2006, 06:51 AM
I am excited to hear your story. The stories here give me such hope.
10-06-2006, 09:29 AM
WELCOME...I can't wait to hear your story and to see pictures..We LOVE pictures!!
10-06-2006, 09:36 AM
Welcome! As one of the moms yet to go thru the surgery I love to hear the word "thriving". So glad you are here!
10-06-2006, 10:58 AM
Welcome to the site! My son also had sagittal and is just over 2 years post op. I am so glad that Gabe is doing so well. Aren't our little ones amazing!
10-06-2006, 01:44 PM
Thanks for the big welcome! I thought it would be a few days before I would see any replys. I'll be posting pictures of my little "ham" soon and look forward to getting to know all of you.
10-06-2006, 03:06 PM
Gabe had his surgery on the same day that my Simon was born. On December 23, Gabe will celebrate his 2nd anniversary while my Simon will celebrate his second birthday.
10-06-2006, 08:29 PM
It is funny how everything becomes a milestone and I find connections and commonality more now then I ever did. The 23rd is defiantely a day to celebrate.
10-06-2006, 09:22 PM
we're new to the site as well. i have to say it's a tremendous encouragement to know we're not alone. my son is having surgery on nov.14th for right coronal CS. it's a comfort to hear your son is well.
it made my day today a little easier.
lisa- mother to michael 3 years old with autism, and lucas 10 months with right coronal CS.
10-06-2006, 10:46 PM
You are not alone. I went hrough Gabe's surgery in isolation because I didn't know anything like this exisisted. It was hard. Dr. Handler, Gabe's surgeon, was so nonchalant about everything. It made me crazy. I kept looking in the eyes of all the other parents going in and out of Children's Hospital. They looked as frightened as I felt. My sister was the only one who didn't try to minimalize my fear. She let me "freak-out" and cry and vent. That helped. In the end, it turned out just like the doctors said it would and Dr. Handler, who is the only one in Denver who does this surgery, was right not to add to my fear. You will get through this and there will be people here for you. I will be here for you. No one should have to go it alone. From what I have witnessed so far, you are among friends here.
My thoughts are with you and your family.
10-07-2006, 06:56 PM
Welcome Jules! I love your avatar! Gabe is too cute with that big grin. We are just at our 9 months post-op!
10-10-2006, 11:52 AM
My daughter just had surgery for right coronal cs on Friday. I love to have new parents to talk to. Your son is so cute.
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