I think we have come to a decision

[forgvn724]

I think that my husband and I have come to a decision reguarding Kevin's head. Given the fact that the are unable to fix the base of Kevin's skull (regardless of whether it is cranio or not) we decided that the risk is greater than the benifit in having the surgery. Something the ps said that has been ringing through my head is, "you cannot put a square house on a crooked foundation", meaning that since they are unable to fix the base of his head, which is the worse part of the deformity, even if the can fix the top it my still end up looking twisted because the base is crooked. I hope that all makes sense to you all.

At this time the surgery is not considered to be medically neccessary because there is not pressure on the brain and the deformity is not affecting him in any other way. We are going to continue to have scans done periodically to check for any brain abnormallities and go from there as needed. While I was looking for someone to tell me that they can fix my son, I am ok with this for now knowing that it is not impairing him.

We are, however, going to have his neck scanned to see if there is a need to have the muscle released due to the severity of the torticollis. The ps suggested this because he said that even thought the deformity may not be caused by classic positioning problems (laying on one side of his head too much), there is a chance that is could be caused by his head being cocked to the one side and pushing the other side out.

Thank you all so much for your much needed support and encouragement in this time of struggle.

[Mom2William]

Paula-I am glad you have come to a decision. I hope that you find the answer with the tort and this helps with his head shape. I wish I could do something to help you. I will keep you in my prayers!
Hugs
Kim

[Jennifer]

What you said, all makes sense. I'm glad you have made a decision....that must have been some sort of relief to you. When do you get the neck scan?

:hugg :hugg

[forgvn724]

I spoke with the pediatrician today and she is working on getting a scan scheduled. She is trying to get ahold of the PS to see what type of scan would be best to do, ct or mri. I will let you all know as soon as I know.

[mom2mykidos3]

I wish you the best of luck. Sometimes once you come to a decision things are better. I am glad you and your husband were able to agree.
Keep us informed.

[plukids]

((HUGS)) Paula! I am so glad you have come to a decision. I hope the scan goes well. What about physical therapy or a chiropractor for the tort?? It might be worth a try prior to surgery??

[snickers9246]

Good for you guys making that decision, I know if it didn't benefit Holly any we would never have put her through such a surgery. I hope you find peace in the decision and are able to help him with his Tort. I'm with Lisa, Chiro worked for us, mind you hers wasn't that bad at all, but if it's able to help without surgery, and it doesn't hurt at all, jsut a little manual manipulation of the spine and neck. Holly always jsut laid int he Chiros arms and let him fiddle away with her back and neck and she never once cries or fussed during or after any adjustment.

Let us know when they set up something for you.

[laurensmom]

Paula, I will keep you in my prayers. You are doing the right thing. I have to agree with Tracey, I would have never done the surgery either. Please keep us posted. I wish you well with the Tort.

[forgvn724]

I have also been having Kevin adjusted by the chiro since he was about a week old. We have seen great things from that, but we htink his problems go deeper.