View Full Version : Lilah's Cranio Journey - Left Coronal Synostosis
11-04-2008, 08:38 PM
I hope this works...
I'm also in the midst of putting together a CaringBridge website that will describe the series of events that led to Lilah's diagnosis, our meetings with doctors and the actual surgery.
11-04-2008, 09:22 PM
I just looked at your story. Lilah is beautiful. My daughter Abby has right coronal and we are 13 days away from surgery. It helps to read your story and I am glad that Lilah did so well. Thankyou for sharing.
11-04-2008, 10:03 PM
I'm sitting here in tears!!! I cry everytime I see one of our babies surgery pics. Thanks for sharing...you and your family are so wonderful!!! xoxo
11-05-2008, 05:35 AM
I too am sitting here with tears rolling down my face...at work today no less!!! congratulations, Lilah looks absolutely amazing xxx
11-05-2008, 01:40 PM
That was beautiful - it made me cry too!
02-21-2009, 12:50 PM
Seeing the slide of Lilah reminded me of when my son had his surgery. He was diagnosed with Right Coronal Synostosis at 9 months. He had surgery March 27, 2008. He was released the day of his 1st Birthday. Not how we intended on spending his 1st birthday. Did you daughter have any soft spots after the surgery?
09-19-2010, 02:18 PM
More before and after pics of Lilah -
go to the thread named:
Lilah's Cranio Journey, To Be Cont'd...
09-22-2010, 12:12 PM
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