new here daughter with sgittal cranio

[Danandtricial]

Just diagnosed with sagittal cranio. we are going for a cat scan on aug 29 and surgery is suposed to be less than two weeks after that. It is all happening so fast. My wife and I decided to just take it a day at a time. The NS says while its not a routine surgery it is fairly common. Just wondered if anybody else is familiar with sagittal and the cvr proceedure for it?

[mom2mykidos3]

My daughter has coronal CS. She is having surgery in October. We are all here for each other. Let us know what we can do.

:welcome

[Katie]

Welcome to Cranio Kids! Dillon had metopic and bicoronal craniosynostosis, so I'm not sure if the surgery varies too much from a sagittal repair. We do have several sagittal parents here though, three that I can think of off the top of my head are Lauren (mattydan), Josette (matthewsmommy), and Sara (saraweise). I'm sure they would be more than happy to share their experience with you.
How old is your little girl? I know how scary this all is, but I can't say enough how well these kids do. They never fail to amaze me!

[plukids]

My daughter had left coronal and metopic cranio. She did have the CVR/FOA but I am not sure how the procedure differs from the sagittal repair. CVR is cranio vault reconstruction. Here's a great reference site that did help me to visualize a lot when my daughter was undergoing diagnosis:
http://www.aafp.org/afp/20040615/2863.html
If you scroll down to the surgical intervention portion it explains a little how the surgeries might differ some. Basically I think the CVR is similiar but the reshaping portion of the surgery is different depending which suture is fused. Like Katie referenced there are some sagittal families on here who can be loads of help and support!

[Danandtricial]

Emily is almost 6 mo old along with her twin sister Ashlyn there older sis is Halia 4 1/2. oh and we got our surgery date today it wil be sept 14.

[mom2mykidos3]

Good luck on the 16th. Sometimes it is nice to have the date.

[Lauren]

Hi there! Sagittal mom here! My son had the pi procedure done (cuts in the skull that resemble the pi sign in math) so nothing was ever removed. He did great. If you have any questions or want to see more pics, just let me know!

[Danandtricial]

Thank you I would love to see the pics. I am sure you can tell which one of the twins is Emily in my pic. Did your sons head look simular to hers? I am not sure what type of proceedure DR Dias plans to use but That is one of the questions I have for him when we see him next.

[saraweise]

Hi! Another sagittal mom here! My son had a multiple strip craniectomy (Dr. Ben Carson - Johns Hopkins) before he was 3 mos. The incision was from front to back in the center of his head. Two strips of skull were removed on either side of the sagittal sinus. The procedure was done on a Monday morning (about 4 hours of surgery) and he went home on Thursday. According to his Dr everything went as planned. My son's head looked exactly like your daughters with the frontal bossing. He also had bossing in the back and narrowing at the temple. The transformation of the head shape immediately after surgery was amazing. I can send pics if interested. Keep us updated on your progress!

[Matthews Mommy]

Hello, and welcome I have not been on in a while but my son Matthew is 4 years old and had the strip craniectomy done at 5 months old. He is having another surgery this September 18th for an open space. His surgery went well we had minimal bleeding, minimal swelling and he healed pretty quickly of course every individual is different, all of us moms can agree they bounce back fast, and we worry more than they do! My pics are not that clear but I'll attach them anyway.


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[Danandtricial]

sara I would love to see you pics also. Thank you.