eeyore81
09-12-2008, 06:10 PM
Hi all. I'm new to all of this and can honestly say that I have never heard of craniosynostosis until a few weeks ago.
Jonathan was born a healthy little guy on June 20, 2008 (3 1/2 weeks early by induction). At his 2 month appointment his pediatrician noticed that his AF was a little smaller then it should be, and that he wanted to keep an eye on it. Just this past Monday (Sept 8) we took Jonathan back to his pedi for a check up due to a cold that we've been so generously passing around our home. While his pedi was checking his lungs I saw his hand move up to his head. He remained there for a while but didn't say anything. I asked him if his AF seemed smaller and he said he wanted to finish checking his lungs and then he had to tell me something. I instantly became scared and knew what he was going to say. After he told me that Jonathan just has a virus that he will have to fight off on his own he told me that he wanted Jonathan to go for a skull xray at Sick Kids (Toronto). He explained that he thought his skull was fusing too early. I asked him what that would mean and all he said was "Operation". I instantly became numb and looked like a deer lost in head lights. I had done some research after the 2 month visit and had all of these thoughts going through my head. We have to wait until Sept 22 for the xray (it was their next available) and it seems so far away.
When we got home from the appt I posted on my birth club on babycenter and one of the ladies over their sent my post to Amy (amyly2n) over here and..here I am. The past few days have been a rollercoaster of emotions. I've been going from feeling so hopeful to feeling horrible and crying myself to sleep. I mentioned to Amy that to look at Jonathan you wouldn't think anything was going on and I sent her some pictures and she agreed. I've been seeing some of the pictures that you all have posted and I can see some similarities. He seems to be getting ridges on the sides of his head. To just sit here and wait is driving me crazy. I wish we could do this xray now and figure out what's going on. I have pictures to post and am going to take some new one's. Jonathan is still sick so I'm waiting for him to get better before I bother him with the camera. I will post as soon as I can, and will update as we find things out.
Jonathan was born a healthy little guy on June 20, 2008 (3 1/2 weeks early by induction). At his 2 month appointment his pediatrician noticed that his AF was a little smaller then it should be, and that he wanted to keep an eye on it. Just this past Monday (Sept 8) we took Jonathan back to his pedi for a check up due to a cold that we've been so generously passing around our home. While his pedi was checking his lungs I saw his hand move up to his head. He remained there for a while but didn't say anything. I asked him if his AF seemed smaller and he said he wanted to finish checking his lungs and then he had to tell me something. I instantly became scared and knew what he was going to say. After he told me that Jonathan just has a virus that he will have to fight off on his own he told me that he wanted Jonathan to go for a skull xray at Sick Kids (Toronto). He explained that he thought his skull was fusing too early. I asked him what that would mean and all he said was "Operation". I instantly became numb and looked like a deer lost in head lights. I had done some research after the 2 month visit and had all of these thoughts going through my head. We have to wait until Sept 22 for the xray (it was their next available) and it seems so far away.
When we got home from the appt I posted on my birth club on babycenter and one of the ladies over their sent my post to Amy (amyly2n) over here and..here I am. The past few days have been a rollercoaster of emotions. I've been going from feeling so hopeful to feeling horrible and crying myself to sleep. I mentioned to Amy that to look at Jonathan you wouldn't think anything was going on and I sent her some pictures and she agreed. I've been seeing some of the pictures that you all have posted and I can see some similarities. He seems to be getting ridges on the sides of his head. To just sit here and wait is driving me crazy. I wish we could do this xray now and figure out what's going on. I have pictures to post and am going to take some new one's. Jonathan is still sick so I'm waiting for him to get better before I bother him with the camera. I will post as soon as I can, and will update as we find things out.