View Full Version : Hi
My name is Samantha, I'm 19, and I have a metopic craniosynostosis (that was corrected when I was a baby). They tell me that if I did not have the surgery, I would have been mentally handicapped. I was a straight A student, a high achiever, and as of now have high aspirations to become an electrical engineer for a military defense firm.
I'm looking for people around my age to share experiences with and whatnot.
You may contact me on AIM at Justsmilestupid or MSN at Justsmilestupid@hotmail.com
I'm looking forward to talking to people who have gone through what I have.
08-27-2008, 08:23 AM
Hi Jade, welcome to Cranio Kids! We have several cranio adults, and a couple of teens here on CK. Thank you for sharing your story with us!
08-27-2008, 08:45 AM
Welcome to cranio kids Samantha, glad you found us. My daughter who is almost 2 had metopic surgery almost 1 year ago, she is doing great also!!
08-27-2008, 11:04 AM
Welcome! It is so nice to see a metopic cranio adult!! My son had metopic cranio and had surgery in February. He is doing well.
Thanks for sharing your story!
08-27-2008, 11:08 AM
I am not close to your age, but I had some similar experiences. I had surgery for right coronal as a baby, and my parents were also told that I would have brain damage if I did not have the surgery. I went on to be a high achiever that made straight A's and majored in math. There are quite a few cranio teens and adults around now. I look forward to getting to know you better.
08-27-2008, 11:30 AM
So great to hear from you Welcome. My son Bryan has Saggital Cranio with my difficulties from not having the surgery in time. glad to hear you did and are doing great. I wish you the best of luck.
08-27-2008, 12:23 PM
Hi! Welcome to CK! I would love to see a pic of what you look like now :) My daughter has surgery for metopic cranio last October.
08-27-2008, 01:06 PM
Hi Jade. Welcome. Glad you're here, we love to know how our kids can grow to be intelligent confident young adults like you!
08-27-2008, 02:48 PM
Hi Jade! Welcome to CK! It's so great to have another cranio adult on the site!
08-30-2008, 05:37 AM
Hello Jade! Welcome to craniokids! Its great to hear from a cranio teen and hear of your success! I'd love to see a photo!! You'll make loads of friends here!
08-30-2008, 08:24 AM
Hi Samantha, welcome to Cranio Kids. My son had surgery for Metopic almost 1 year ago so i would be really interested in seeing a picture of you as an adult. Looking forward to getting to know you x
08-30-2008, 08:33 AM
Welcome to CK. So glad you are doing so well.
06-26-2009, 04:59 PM
Hey Samantha! I'm seventeen living with uncorrected saggital. I am so glad to finally reach a teen.
06-26-2009, 05:53 PM
welcome Samantha! it's always nice to see a cranio teen or adult joining us. it's very reassuring for parents like myself who's little one just had surgery. thanks for joining and sharing your story.
06-27-2009, 03:07 AM
Welcome!!!! As a parent of a corrected metopic boy, I'm so glad to hear you're doing well!!! You give us parents, with such a hard decision to make, hope!!! Hope you hang around and get to know us all...
06-27-2009, 06:32 AM
Hi Samantha, welcome to craniokids! looking forward to getting to know you and hearing your story, you are sure to make loads of friends here xx
06-28-2009, 03:40 PM
Wow! You sound like a very smart lady!
My son, Levi, is awaiting surgery for metopic cranio, he was just diagnosed and he's only 3 months old. My fear has been developmental issues... however judging by your post, I might be worrying for nothing!
I am new to craniosynostosis and I am curious as to why you identify yourself so much with your craniosynostosis. According to your post, it was corrected at such a young age and you're such a bright young adult. Do you think of your cranio often? If so, can you tell me why it has impacted you so much?
I often think that I don't want our son to be labelled or known only as the kid who had the head surgery...etc. So I didn't plan to tell him too much about it when he is older... would that be wrong??
Just wondering what your thoughts on the topic would be...
Wishing you continued success,
07-03-2009, 08:09 AM
Welcome to CK! im bicoronal myself, and have had several surgeries to correct it. I would love to hear your story and how it has impacted you!
Stephanie - I think that you should tell your son everything about his cranio. It will help him understand who he is and how special he is. I also think he will accept it better. It will also help him be accepted by others, as he will be able to answer their questions so they can accept him for who he is.
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