sun & scars

[plukids]

Just wondering what sun does to the cranio scar? I have been keeping hats on Sylvia most of the time but just wondered if you all had any knowledge on exposure??

[Jennifer]

The only thing I know is that it doesn't tan :giggle Emily's scar shows a bit more in the summer as her head gets 'tan' (she has such light hair) and the scar appears alot whiter- in the winter when she has paler skin, you can't see the scar at all......

[eden'smom]

Lisa--Don't really have an answer for you, as Eden has such curls that you only see the scar when her hair's wet or when the wind blows. It does look rahter white, I guess, but I don't really do anything with it, other than try to hide it.

I love the new picture of Sylvie! She looks great! Very pretty and a beautiful smile. How are you all doing?

[Katie]

I think Jennifers right...it won't hurt it to be exposed to sun, but it may be more noticable because it won't tan like skin usually does.

[Matthews Mommy]

I shave Matts hair really short in the summer and everybody notices, but it is ok for exposure it does not tan. Plus I get the dumb people who ask me if I actually cut his hair that way.....DUH, does this look like a new style to you! Then I get all caught up in explaining Matt's whole ordeal. Matt always wants to wear hats but I tell him he is unique and special and should not hide who he is, it is a part of him and his journey. Then he smiles, it's just annoying with the staring and questions more than anything.:icon_mrgr

[plukids]

...DUH, does this look like a new style to you!

I tell him he is unique and special and should not hide who he is, it is a part of him and his journey. Then he smiles, it's just annoying with the staring and questions more than anything.:icon_mrgr


Thanks for that! You are so insightful! Part of Sylvie's scar healed pretty wide and when I put her hair up you can definitley see it. I catch myself trying to decide if it matters or not. If I should then just leave her hair down to hide it. I am constantly reminding myself that this is part of her and that it also raises cranio awareness if I am asked about her scar.

I love the DUH!!

In my silly brain I kept thinking maybe her scar would get dark? Her's is white and I assume from everyone's posts will stay white! Thanks guys!!

[vancesmommy]

I also struggled with trying to hide it or not worrying about it. I decided to not worry about it. I want him to know that it is a part of him and he should be proud of it. Call me crazy but I think it is cute to see his zig zag when I have his hair all spiked up.

[mikaylasmommy]

Mikayla is a little older than some of the kiddos on here but, she knows she has a scar because she has gotten it sunburned. That part kind of sucks. I try to get sunscreen on the top part of her head. They zigged really close to her cowlick so that part of her scar is never covered by hair. On one side of her head you have to find her scar to see it and the other is like some of your kids. It healed really wide. Almost as wide as my thumb in spots. I have struggled with trying to hide it also. Now that she is older and knows that the Dr. did surgery on her to "fix" her head I try not to worry about it. I like it when she tries to explain to people what has happened to her. My favorite part is she calls her plates on the sides of her forehead her "bumps". I love the stuff kids come up with!

[craniomommynbaby]

My scar stays white, 29 years later. When my scalp gets burned, I do not notice the scar being more burned or anything. Other than wearing a hat, I wonder if there are any sunscreen products out there designed for scalps with hair?

[KALEMSMOM]

Kalem's scar is barely noticeable, only when his hair is wet. He won't wear a hat and he's blonde and we put sunscreen on his scalp otherwise he would burn. I haven't noticed a change in the color since the summer.

[ExpatJen]

we saw Audrey's Dr. Friday and he gave us some bad news on her scar. Following her surgery, she would not leave an area on the top of her head alone and kept re-opening the wound. I was beside myself trying to get her to stop and even got help from a dermatologist but in the end the only thing that stopped her was putting a strong-sticking bandage over it, in spite of knowing it would be difficult to remove easily from the surrounding hair.(in the end it wasn't so bad by using a hair conditioner). I should have done that alot sooner (we tried antihistimines to stop the itching and creams as well). The Dr. said the area is so thin now that it is unlikely to have hair growth - and it is right on top of her head, about the size of a quarter! It is such a shame because the rest of the scar is just the thinnest little line. We were told that we should wait "a long time" and see if it doesn't improve on its own but that if it doesn't we should have the area cut out and the sides sewn together. Sounds horrible but she cannot go through life with such a bald spot on the top of her head!

Jennifer C.

[Matthews Mommy]

Thanks for that! You are so insightful! Part of Sylvie's scar healed pretty wide and when I put her hair up you can definitley see it. I catch myself trying to decide if it matters or not. If I should then just leave her hair down to hide it. I am constantly reminding myself that this is part of her and that it also raises cranio awareness if I am asked about her scar.

I love the DUH!!

In my silly brain I kept thinking maybe her scar would get dark? Her's is white and I assume from everyone's posts will stay white! Thanks guys!!

I think It's not silly to think it would get dark, it's ok. Matt has been almost 4yrs. post-op and it is very wide on one side a lot more noticeable then the other but our children have a special purpose god gave them they experienced this for a reason. Someday they may touch someones life and help them, god never gives us more than we can handle every experience in our lives has a meaning and purpose. :icon_mrgr

[Matthews Mommy]

Jennifer,
Sorry your going through this right now I'll hope that everything will work out, and keep your family in my prayers. Lots of hugs coming your way:hugg.