surgery still recommended

[leeanne]

So, the CT went well. Isaac was in there for about 15 minutes and came out HUNGRY!! I was able to control my emotions, thanks to my mom's support and not even cry when handing him over to the anesthesiologist. I'm so lucky to work in the OR and pick the MD's who care for Isaac. Anyway, the CT showed that the sagittal suture is fused except for a little in the very front, so the recommendation is still surgery. I sure wish that he was a candidate for the minimally invasive procedure, but, apparently , he is not. Has anyone out there had this done?? Surgery date now has moved to August 24th two weeks later than first anticipated. Just more time for Mom and Dad to worry!:mad: Also, just wondering if any of you all donated blood for your kids surgeries. I'm a match, but can't donate. Luckily, others in my family can. We were thinking of donating two units, but the nurse says he will probably need more and maybe FFP also. Makes me so mad that insurance companies will cover general population blood, but not specifically donated blood. Thanks for any input.

[Matthews Mommy]

Yes, my son Matt had the same exact CT result. I had donated blood for matt as well as my hubby but unfortunately my son has a rare antibody in his blood that we both do not have so he could not receive ours they had to find a special blood for him and we always have to keep some stored for him. If he is given ours his body will reject it and shut down.:no So I look on the bright side maybe soon enough I will see if any of his siblings have that rare antibody and that will be good for both of them because if ever in an emergency they can help each other.
I am sorry you have to go through this but I will tell you that everything will be ok. They take it better than us, we panic more while they bounce back!
I will keep your family in my prayers.

[mom2mykidos3]

My CFS is going to give Miriam a dosage of shots one a week for 3 weeks prior to surgery to up her blood levels. I can't remember the name, but it is the medicine that they have been giving cancer patients for years. It ups the white blood count. Yes, my husband still plans on giving blood, but you might want to ask about the shots.

[leeanne]

No one has mentioned the shots to me. Thanks! We will definitely check it out. Thanks also for the prayers!! In my heart I know he will be alright, it's just my brain that is having difficulty.

[Jennifer]

My SIL donated blood the first time (1 unit- only half used) and my husband donated this last time (1-unit- minimal if any used- I'm pretty sure none was)...We had to pay the first time ($90) and were told the second time the charge would be $50, but never got charged?