Taylor's story more surgeries to go @ 3yrs

[clmarq]

My daughter Taylor has a tramatic birth. She was 9 pounds 5 oz. I couldn't push her out and doctors and nurses had to jump on me and push her out. It was aweful. sh e swallowed the first feces myconium. Had the cord wrapped around her neck. I waited for a cry and heard nothing she was wisked away from me and I couldn't see her for 3 hours finally after the fixed me I was wheeled in to see her speciallised had to come from another hospitol. 3 weeks later I was able to bring her home thinking the worst was over but, then my pediatrician was worried about her shape of her head. I ws to but attributed it to birth trama and would even out. But she sent us to a specialist for crainosyntosis. It was and at six month she needed the surgery, she recouped great. she is beutiful but, i've still been noticing some unevenness and something not right. At my last visit they said it is not how they'd like but the surgery is optional.They asked us to see a eye specialist we did and he found problems in both eyes, she has glasses now but, if they don't help she'll need a surgery for that also and soon. We went back to the crainosyntosis specialist and after all the opions we know she needs the surgery again.so she needs 2 more surgeries . I am at a loose of feelings and need emotiona help just someone who knows this stuff or someone to relate to. Has anyone else ever had to do more surgeries? If you didn't what was the outcome was it unnoticeable after time , or noticeable and teased in school? I pray for all you and hope someone can relate or just talk. Thanks.

[melsch]

Welcome to CK! I am so sorry you are facing more surgeris. I have not personally had the second surgery experience, but I know there are several others on here that have...I can only imagine that your feelings are closely related to your first experience. You have found a wonderful site full of super supportive people that have lots of great advice! We are always here to talk and listen!

[Janet]

:welcome

I'm so sorry that you have gone through all of this with your baby so far. Which type of cranio did she have?
There are a few people on here who's baby has had more then 1 surgery.I'm glad that you found us, You'll find so much support here.

[momoftwo]

Welcome!!
HOLY COW what a birth..doctors and nurses jumping on you to get her out AND the fact that she is over 9 lbs and you had her naturally!!! BLESS YOUR HEART!!
I am so sorry to hear that your daughter may be facing more surgery and is having problems with her eyes. It is so hard to watch your kids struggle and to be in pain. Know that we are here for you!! :hugg
Amy

[AllyCat]

Oh gosh, how traumatic this has all been for you! I know what you are talking about...I'm an OB nurse and when a baby won't come out, usually due to large size, we stand on a stool and put a LOT of pressure with our hands just above the pubic bone in an attempt to press the anterior shoulder out. It's called a shoulder dystocia and it is an emergency. If we don't do this, it's an emergency c-section and the babies often have a lot of problems.

Then the meconium aspiration...I've seen that a couple times too and those babies end up in the NICU as yours did.

Add to that the cranio and you've had a tough run. I'm so sorry all this has happened to you.

What type of cranio? Our son has not had surgery yet for left coronal, but he has uneven eyes and we've already been told to expect eye surgeries later in life. We are hoping it will correct with the surgery and sometimes it does, but we feel we are prepared for the less desirable possibilities.

I know others here have children with multiple surgeries.

Welcome and I hope you find some answers. Please feel free to post some photos! We love our cranio kids!

[beccad]

Wow I'm so sorry that you have had such a rough time. My daughter Julianna has left coronal and is having just one surgery on June 26 so I can't give any advice there. But my oldest son, Noah, has had three eye muscle surgeries and is possibly looking at another if glasses don't work. PM me if you want to know more about that. I will be praying for you and your family. I'm glad that you found CK and I hope you feel welcomed. We talk A LOT around here so I don't think you will be at a loss for someone to talk to. LOL Welcome!!

[Abby'sMom]

I'm glad you found CranioKids! You've been through so much already and now to be facing additional surgery must be extremely stressful. I've found a great deal of support here and I'm sure you will too. I just wanted to send a hug your way...:hugg

I'd love to see pictures of Taylor. BTW, what is your name?

[Jennifer]

Wow, Taylor sure knows how to make an entrance! I'm sorry that so much of it has been tramatic. I'm sorry that it looks like another surgery is needed. My daughter has had 2 surgeries because of cranio- she has coronal cranio and I believe I read that is the single suture cranio that has the highest rate of needing a follow-up surgery. A 2nd surgery is never easier, but in Emily's case it was a much less invasive surgery, so that made it a little easier for me.....

Welcome to the site! I hope we can offer you some support!

[kking]

Welcome here! Sorry that you guys are still on this roller coaster ride! I don't have alot of help from the eye angle. We do see a ped. eye doc and Austin has eye issues too, but no surgery for that.

We have had repeat surgery (CVR/FOA). Austin had his 1st at 22 mos then another at 3 y/o. He's metopic, but other sutures had fused prior to the 2nd surgery also. I'd be happy to help however I can, or just be an ear of support.

(((hugs))0