Jorge Posada Foundation, anyone know about this!! GREAT!!!!

[dannlark]

http://www.jorgeposada.com/html/jpf_about.html

Wow, now that's AWESOME!!!!

*Larkin

[craniomommynbaby]

It is pretty cool what they are doing. Max (son of Amy, Max's Mommy) met Jorge Posada. She posted pics on CAPPS a while back. Maybe she will see this and share again. :)

[three.little.boys]

I have known about this since Quintin was diagnosed. My friend here in town that has 2 sagital kids told me about it...yet she said they applied to get financial assistance (as the website states they want to help families of kids with cranio) Well....not only did they not help her, they never even got back to her. So, other than spreading the word about cranio, I'm not so shure what they are doing to help.

Am I wrong?? Anyone have a good experience with them???

[craniomommynbaby]

From my understanding, they help kids overseas more than here.

[beccad]

I contacted them about Annie and Timothy. I had completely forgotten about it and then one day out of the blue they call me. It was like two months ago that I emailed them. I gave Annie the lady's email and they have been talking back and forth. She sent them all of Timothy's information. I hopeful that they can help Annie.

[Wyatt's Mom]

Oh Becca, I really hope they help Annie and Timothy!!! Good for you for doing that. That is awesome!

[dannlark]

I really hope they can help. That would be great!

*Larkin

[EmmaLacey]

Way to go Becca!! You Rock!!! I hope Timothy gets the help he deserves.

[three.little.boys]

That is cool that they help overseas kids, but what about us Americans?? We really don't have $20,000 to pay the balance of Quintin's bills. What about normal hard working familys here in the states??

I hope they can help Annie....she really deserves a break! Great job Becca!

[beccad]

I know what you mean Sadie. I've been praying about this for the past few weeks. Annie has really been on my heart and I really want to help her out. I believe that Julianna has cranio for a reason and I found all of you for a reason. I feel like I need to start a charity or something to help with travel/surgery costs for families that can't afford them. I really don't know where to start but this has been on my heart for some time now. I have been talking to some people here in Memphis about some ideas for a fundraiser but it is kind of slow going right now. I want to really raise awareness and help people in the meantime. If anyone wants to help or has any ideas for me just pm me and we can talk. I will not be able to sleep until I do something. I love all you guys and together I'm sure we can all do something.

[Max's Mommy]

I dont believe they help overseas kids - there was a family in Puerto Rico that was a friend of a friend that they had helped but that was it. (s far as I know) The Posada Foundation is a work in progress. They made their announcement long before they began fund raising and they really werent in any position to help anyone. They changed their direction from personal help to sharing funds with hospitals and equiptment...which they have done. They donated all new equiptment to Montifiore Kids Hospital. They do hold fundraisers but like I said, this is still a work in progress. They have switched directors a few times. Last I heard, Laura Posada's friend Teresa was running things but i'm not sure if she's there anymore.

I think the passion and the sentiment are there and it will grow. Although the public service announcements are for Telemundo and not american television, they are still out there and trying to raise awareness. Lets face it, he's all we have - we would be in a much better position if Angelina and Brad gave birth to a cranio baby (or two) but like Teresa did remind me....believe it or not Jorge Posada is just a Yankee and not too many people are interested in his cause.

There are pictures from our trip in Max's video but I will also try and post them.

[Max's Mommy]

Here are some pictures....

[three.little.boys]

Amy-

I hope I did not offend you...I did not intend to in any way!!! I think they are doing a wonderful job....anytime cranio is is the headlines is wonderful!

[Max's Mommy]

Oh gosh did I sound cranky? Sorry - no of course - I was just trying to clarify. :)

Amy

[Katie]

It is a great organization. They actually have Dillon's story linked on their site under programs.

[Katie]

Amy, love the pics, what a neat experience!

[three.little.boys]

Oh gosh did I sound cranky? Sorry - no of course - I was just trying to clarify. :)

Amy


Amy- no you did not sound cranky at all. I just re-read my post earlier and I thought perhaps I came across as harsh when I did not intend to. Just wanted to make sure all was OK.

[kking]

They have a Gala each year. We were able to attend last year's event and had a great time.

I do know that since attending, they've started putting surgery families together with a mentor.