View Full Version : Heather (Brownsga)
05-29-2006, 02:55 PM
Just wanted to say :welcome to the group. I'm glad you found us. I've read a little on your story......I hope we can be of help and supportive! :colors Can't wait to learn more about you!
05-31-2006, 07:40 AM
:howdy Hello!!! Hope to hear more of your story!!! :bouquet
05-31-2006, 12:09 PM
hello, welcome and hope to hear your story. Everyone here is great and very supportive.
06-01-2006, 05:28 PM
Hello and welcome!
06-02-2006, 03:55 PM
My name is Alex, my wife Jennifer and I are proud parents of TWIN girls. Thankfully they are not identical twins, Natalie is the oldest by 3 minutes and has Pfieffer's Syndrome Type III and Olivia is her little sister. Our little girl has had 24 hospital admissions and 13 surgeries. (Endoscopic suture release, 3 traditional Vaults, 2 forehead advancements, 3 Chiari decompressions, trach placement, broviac port placed, and a few I know I can't or don't want to remember) We started with doctors at Herman Childrens Hospital in Houston, they did her first surgeries, but then they just kind of gave up on her. They told us just to take her home and love her that there was nothing else they could do. Well that was not good enough, we took our little angel to Dallas to see Dr. Fearon. If any one asks me for a doctor to take thier little one too he is it. Now she is almost 2 (July9) and is getting bigger and stronger every day. She is delayed physically, but she is as smart as her sister or smarter. She still has yet to crawl but we are working on that. It has been a tough couple of years on our entire family. If it was not for the love and support of my wife's mother we never would have made it this far. My wife is active with CCA kids, and we are looking forward to thier retreat in Hearshy PA this year. Hope to hear from some of ya'll
06-02-2006, 04:12 PM
:adore They are beautiful!! I just love your avatar. I hope she just keeps getting stronger and pray the future is a bright one for you all!:pray
06-02-2006, 07:42 PM
Alex, welcome to Craniokids. I also wanted to add that you have 2 beautiful girls. Natalie seems like one little strong cookie. Have fun in Hershey this summer!!! Take lots of pics.
06-03-2006, 09:57 AM
Welcome, you will love this place! It's done wonders to help me cope with my daughter's diagnosis! Hershey is an awesome place, have a great time - you deserve it!
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