View Full Version : NS follow up
04-27-2006, 10:13 AM
Vance had another eye appointment and a NS appointment Tuesday. His ophthalmologist doesn't think his strabismus is bad enough for surgery at this point, so he has to wear an eye patch for an hour a day to strengthen his right eye. He has a follow up on July 25th to re-evaluate. So far he has done great with keeping the patch on! I will post a picture later. I'm not sure what to think of the NS appointment. This was our first visit with his new NS since moving back to GA, so I was a little nervous about the change! I was very surprised and relieved to hear that he did his residency in OH with Vance's old NS and they are very good friends! He was going to go home and call to let him know he had one of his old patients! Anyways, he said he didn't feel any ( I can't think of the word he used!! ) unwanted "holes". He does think it looks like his head is getting the "triangular" shape back. :no Which I would be kidding myself if I said I hadn't seen it too! Vance is also really sensitive to light, but the ophthalmologist can't find a reason why, and he has been rubbing his head a lot lately. So I don't know if those have to do with the cranio or not. He is 16 months and still isn't walking either! The NS wants to wait 3 months and see if anything has changed. So we go back July 25th and see if he wants another CT scan. He said 10% of cranio kids need a 2nd CVR and the majority of that 10% is metopic. So it looks like I am back to the "wait & see" game! :banghead :banghead I will take some new pics and post them next to some older pics so you can tell me what you all think!!
04-27-2006, 12:32 PM
Well, bummer...that always sucks when you come away with questions and concern! I hope and :pray that it all works out and that another surgery isn't needed!
04-27-2006, 02:05 PM
I too will pray that he doesn't need another surgery. I wouldn't worry too too much about the not walking. Kalem wii be 14 months (13 adjusted) on May 6th and he's still not walking as well. My friend's little girl is 17 months and she's not walking yet either and she's non cranio. She walks around furniture and has taken a few steps but is not interested. Kalem does the same, I'm just waiting for him to let go. I find Kalem's head is changing as well, his temples are starting to pinch again, and his eyes are slanting again as well. I know they said things will change in time. I guess we'll see. Hang in there Denise.
04-27-2006, 02:42 PM
:prayI will pray everything is okay w/ Vance. Maggie started walking at 10 months, but her friend is a week older than her and is still not walking.(also non-cranio) They will be 18 months old next month. As long as they are "attempting" it, I don't see why there would be a problem. I am a firm believer that all kids grow at their own pace. Just like some kids are friendly, some are shy, some are wild and others are timid. Good luck nonetheless, when he starts going you won't stop the little guy!!!:hugg
04-27-2006, 03:14 PM
I have a really bad habit of comparing when David did something to when Vance does it. I know they are two different kids, aside from the fact that Vance has had 3 surgeries, and had to wear arm restraints for 3 weeks after two of them! So since David walked at 10 months, I seem to really be worried that Vance isn't walking at 16 mo. He does walk around furniture, and he will walk behind one of his push toys, but he will not let go! He just seems to be scared, so I guess I just need to let him do it at his pace! I think I just feel the need to worry all the time! haha
04-27-2006, 03:53 PM
((HUGS)) Denise! That stinks that your appointment left you with concern. I will pray for Vance. Hopefully the patching will continue to go well and your next appointment will show some positive head changes. I hate the waiting and uncertainty. It is frustrating. Know that we are always here if you need to chat!
04-27-2006, 04:50 PM
Denise I hear you when it comes to comparing. Loic also walked at 10 months said at least 12 words by 14 months and was talking up a storm by 18 months. Kalem is nowhere near those milestones and I like you, try not to compare but it's very hard sometimes and I always wonder if there is something else!!! He's been through all kinds of tests as well as a development evaluation and he's within the norms. Our OT said she only starts worrying if they aren't walking by 18 months.
04-28-2006, 03:23 PM
:hugg I HATE waiting, it's one of the hardest parts of this journey :hugg
Powered by vBulletin® Version 4.1.4 Copyright © 2013 vBulletin Solutions, Inc. All rights reserved.