View Full Version : Humboldt County Doctor
03-03-2008, 02:23 PM
I am looking for a doctor in Humbolt County that is experienced with cranio issues. My pediatrician just keeps saying to wait and wait and wait. My little guy is 6 months old. He started rolling over and babbling non-stop at 3 months but then a metopic ridge appeared and the rolling over and babbling stopped immediately. He still is unable to sit up at all as well. My ped had an ultrasound done and since the fontanel is basically closed they couldn't see much and suggested an MRI which my ped felt was just an ordinary disclaimer for ultrasounds and wants to wait another month to see if anything changes. I am just getting so frustrated and would love to see someone with some experience in this field. Thanks
03-03-2008, 04:40 PM
Did you try the above link? I know how frustrating it is. My pedi said to watch Fiona's head over a year for changes...Thank God I didn't listen to him.
03-03-2008, 04:44 PM
Thanks I'll try the link. At this time I have to wait for a referral to one of these centers from my pediatrician which she will not do until we wait longer. thanks for your help!
03-03-2008, 04:50 PM
That's so crazy.....Fiona was diagnosed at 3 months old.....she had surgery at 10 months, there is no point in waiting. A lot of doc/pedi don't know much about cranio issues. Our family doctor (who I love) had never seen a baby with any cranio issues, Fiona was her first.
I hope that she puts that referral in soon. Good Luck, do you have a picture of your little peanut that we can see?
03-03-2008, 04:55 PM
He is asleep on my chest at the moment, the only place I can get him to sleep for more than 30 minutes, but when he wakes up I will try and get a photo uploaded. Thanks again for your posts, it's nice to know there are many who have traveled this road and came out the other side.
03-03-2008, 04:58 PM
This site is wonderful, I've been on here for almost 1 year, I honestly couldn't have gotten through Fiona's surgery (before and after) without everyone's support on here. We will do the same for you!!! We have or are going through the same journey although there are different types of cranio, we all know what each other is going through.
03-03-2008, 07:48 PM
You are right to be concerned!! Keep pushing for answers and trust your mommy's instinct for more answers. Do you need referrals??? If not, I would just make an appointment wtih a neurosurgeon of a craniofacial surgeon...skip the Peds. all thogther! They are good for ear infections, but most don't even know what cranio is (my pedi. included!)
Welcome, good luck, and please keep us posted! Hang in there, mom, you are doing a great job and the right thing!!
03-03-2008, 07:54 PM
I assume I need a referral to a n/s but I will make some calls to check, Thanks for the help.
03-03-2008, 08:17 PM
It depaned on your insurance. A HMO needs referrals...a PPO or POS usually does not need referrals. Call your insurance co. If no referral is needed, then ask them for a list of NS or CFS that are in your network. Then, call one (or two or three!) and make appointments. If referrals are needed, then don't mess around. Just tell your pedi. directly that you want a referral....end of story!! Good Luck!! (BTW...I sat on my arse for 1 month when Q was 6 months old because our pedi. convinced me that Q's head was just fine...just a little flat from sleeping worng! Those pedi's have a way of convincing us that they know more than us...even against our motherly instincts!)
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