judyspady
02-21-2008, 05:01 PM
Hello everyone! I've been a member of Craniokids for about 4 or 5 years and met Katie online through a friend of mine from High School. Anyhow, I never thought I'd someday be sharing our story of two boys facing craniosynostosis. I hope our stories will help provide hope for those recently facing the difficult news. The results really can be amazing!
Our oldest son, Eli (now almost 6), was diagnosed when I asked about the roundness of his head during our 2 month well checkup. They sent him over for Xrays and I really thought it was nothing...until I got the call that it was Sagital Craniosynostosis. I couldn't believe that they were going to cut my baby's head open! After learning a great deal about the birth defect I pushed to schedule the surgery at Children's Hospital in Denver. He went in for surgery on June 20, 2002 and was only in for 4 days. He did great during the surgery and needed no transfusion. His little head was already round when we saw him on the recovery table. We had some issues in recovery because they were so busy that the nurse forgot to give him the medicine to help with vomitting. They encouraged me to give him a bottle right away and of course he vomitted it up. This was awful because he respirated and was having trouble breathing. The result was that they had to do a procedure where they stuck a tube up his nose and sucked out the goop. We left the room and he was better later but it was an unfortunate mistake. We were in recovery for many hours because the rooms were all full. We finally got relocated to a room we shared with another kid. At least we were more comfortable. Here are a few photos of the surgery. Now he is a smart, adorable little boy in his first year of school and you can't tell he ever had surgery. We are very blessed that Craniosynostosis is 'fixable'.
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Judy Spady
Bayfield, Colorado
Our oldest son, Eli (now almost 6), was diagnosed when I asked about the roundness of his head during our 2 month well checkup. They sent him over for Xrays and I really thought it was nothing...until I got the call that it was Sagital Craniosynostosis. I couldn't believe that they were going to cut my baby's head open! After learning a great deal about the birth defect I pushed to schedule the surgery at Children's Hospital in Denver. He went in for surgery on June 20, 2002 and was only in for 4 days. He did great during the surgery and needed no transfusion. His little head was already round when we saw him on the recovery table. We had some issues in recovery because they were so busy that the nurse forgot to give him the medicine to help with vomitting. They encouraged me to give him a bottle right away and of course he vomitted it up. This was awful because he respirated and was having trouble breathing. The result was that they had to do a procedure where they stuck a tube up his nose and sucked out the goop. We left the room and he was better later but it was an unfortunate mistake. We were in recovery for many hours because the rooms were all full. We finally got relocated to a room we shared with another kid. At least we were more comfortable. Here are a few photos of the surgery. Now he is a smart, adorable little boy in his first year of school and you can't tell he ever had surgery. We are very blessed that Craniosynostosis is 'fixable'.
256
257
258
259
Judy Spady
Bayfield, Colorado