I picked up the CT report.

[Katie]

Remind me next time to wait until right before the follow up appointments before I pick it up. I see things on there that worry me and then have to wait to find out what it means! Dillon's NS wrote on the script for the radiologist to compare this CT with the last one he had 8 months ago. Here's bit and pieces of the report:

Indication: Craniosynostosis

Impression: Overall no change in appearance of the skull since the prior study.

You'd think that was great, right? But then it says:

Findings: Again noted is left sided coronal synostosis with flattening of the calvarial vertex. (It also goes on to mention the defects [holes] in his skull, which "appear to be stable").

The thing is, I don't know how that was "again noted" when compared to the last CT, when that wasn't on the last CT. To me that sounds like fusion of the left coronal, unless I'm completely misunderstanding that. I sure wish we could get in to see the NS sooner than the 11th. Hopefully it isn't what it sounds like and everything is just fine. Regardless of what it means, I know Dillon will be just fine. It's just hard to think of him having to go through another surgery. We knew there would be another reconstruction down the road, but I had it in my head that we had a couple of more years before that happened. I'll post some of the CT shots in a minute...

[Katie]

I see two spots that might appear to be fused slightly, but unfortunately I'm not the expert:
Left
http://img.photobucket.com/albums/v254/d43ka/left.jpg

Seems like there is less space on this side, the only opening I see is where the defect is at:

Right:
http://img.photobucket.com/albums/v254/d43ka/right.jpg

You can see the asymmetry coming back here:
http://img.photobucket.com/albums/v254/d43ka/front.jpg

Top of head:
http://img.photobucket.com/albums/v254/d43ka/top.jpg



ETA- WHoa, I just realized you could see his zig zag incision scar in that first one!

[Jennifer]

Wow (on the zig-zag) I didn't see it until you pointed it out. Based on what you wrote- I would guess the same that you posted- the suture is fused- though we don't know the whole story....maybe he was saying it was fused previously- compare it or something like that. Can you call and find out?? I'm hoping and praying :pray that it doesn't mean it's fused again!! Time will pass quicker than you think- try not to worry to much! :hugg

[Katie]

Can you call and find out?? I'm hoping and praying :pray that it doesn't mean it's fused again!!

I called yesterday, but the NS isn't in the office unfortunately. Time is going by pretty quick, and he also has a follow up with his craniofacial surgeon on the 17th.

[verdon2]

:pray We're Praying for the best!!! Don't jump to conclusions, leave it to the experts. In the meantime :hugg to you all, we will be thinking of you!!!!!:yes

[KALEMSMOM]

I'll be praying that all goes well for Dillon. I know you mentioned that he will need touch ups but I would hate the thought of ANY child having to go through a second CVR. My fingers and toes are crossed for you guys... Please let us know as soon as you have news.