babylaura
01-27-2008, 04:29 PM
Laura was our first child but second pregnancy as I had had an early miscarriage in late 2006. This made me a little nervous throughout the pregnancy, but everything seemed to go smoothly until the last minute.
I had noticed that I did not show much, even at the end, but the midwife told me that everyone carries differently. My scans showed that Laura was a long way in, nestled deep in my pelvis. We knew the placenta was anterior, but not that she was back to back until labour started.
When I was 37+3, I was having bad backache and went to see the midwife. She examined me and told me I was in early labour - I was amazed. Contractions started but during the night they stopped, and my blood pressure rocketed so I was transferred to the John Radcliffe Hospital.
Laura seemed to be doing fine but because of my blood pressure, they broke my waters and induced me on a drip. Laura was finally born at 37+4, at 4.45pm on Thursday 8 November 2007. She weighed 6lb 7.5oz and to us she looked just perfect.
A few days after the birth the midwife noticed Laura was jaundiced. As this persisted beyond two weeks, she was referred for tests. We were so worried during this time that we never thought to look at her head shape. At five weeks, the jaundice finally went. We had one week of not worrying about her, and then at her six week check, the doctor scared us half to death.
She said she didn't think Laura's head had grown since birth, and that her fontanelle seemed closed and she was concerned about skull deformity. She rushed us to A&E where the doctors re-measured her head and said it had actually grown the amount it should. However they were concerned about her skull shape, so they arranged an X-ray and gave us an appointment at the paediatric clinic.
Laura was 7 weeks old when we took her along to see the paediatrician. She seemed to be absolutely fine except for her head shape, the paediatrician said she was developmentally right where she should be, and thriving well. In fact, she said she was a poster child for breastfeeding! However, the X-ray suggested sagittal fusion, as did her head shape, and so she referred us to Dr Wall's team.
Our appointment for the clinic is a week on Tuesday (5th Feb) but I'm afraid I am worrying myself sick. I have pretty much convinced myself she has SCS: I think I can see minor webbing to her toes, her eyes seem a little wide apart, and I'm not sure they open fully. Her ears seem a little small. I think I can also see minor webbing to my toes and my eyes are a little wide apart.
I may be worrying myself unduly and I hope I am. Certainly my parents and husband think I am crazy. But we will have to wait and see.
I will update you on the 5th. Some pics below - any feedback on whether you think she exhibits syndromic signs would be much appreciated.
UPDATE - 23 Feb
I realised I never updated on Laura's appointment on this thread. Dr Wall confirmed sagittal cranio but he is confident it is non-syndromic. She has a CT scan booked for 10 March, and she is on the waiting list for a strip craniectomy sometime between April and July this year. We're very relieved, and she is coming on very well, especially her head control.
I had noticed that I did not show much, even at the end, but the midwife told me that everyone carries differently. My scans showed that Laura was a long way in, nestled deep in my pelvis. We knew the placenta was anterior, but not that she was back to back until labour started.
When I was 37+3, I was having bad backache and went to see the midwife. She examined me and told me I was in early labour - I was amazed. Contractions started but during the night they stopped, and my blood pressure rocketed so I was transferred to the John Radcliffe Hospital.
Laura seemed to be doing fine but because of my blood pressure, they broke my waters and induced me on a drip. Laura was finally born at 37+4, at 4.45pm on Thursday 8 November 2007. She weighed 6lb 7.5oz and to us she looked just perfect.
A few days after the birth the midwife noticed Laura was jaundiced. As this persisted beyond two weeks, she was referred for tests. We were so worried during this time that we never thought to look at her head shape. At five weeks, the jaundice finally went. We had one week of not worrying about her, and then at her six week check, the doctor scared us half to death.
She said she didn't think Laura's head had grown since birth, and that her fontanelle seemed closed and she was concerned about skull deformity. She rushed us to A&E where the doctors re-measured her head and said it had actually grown the amount it should. However they were concerned about her skull shape, so they arranged an X-ray and gave us an appointment at the paediatric clinic.
Laura was 7 weeks old when we took her along to see the paediatrician. She seemed to be absolutely fine except for her head shape, the paediatrician said she was developmentally right where she should be, and thriving well. In fact, she said she was a poster child for breastfeeding! However, the X-ray suggested sagittal fusion, as did her head shape, and so she referred us to Dr Wall's team.
Our appointment for the clinic is a week on Tuesday (5th Feb) but I'm afraid I am worrying myself sick. I have pretty much convinced myself she has SCS: I think I can see minor webbing to her toes, her eyes seem a little wide apart, and I'm not sure they open fully. Her ears seem a little small. I think I can also see minor webbing to my toes and my eyes are a little wide apart.
I may be worrying myself unduly and I hope I am. Certainly my parents and husband think I am crazy. But we will have to wait and see.
I will update you on the 5th. Some pics below - any feedback on whether you think she exhibits syndromic signs would be much appreciated.
UPDATE - 23 Feb
I realised I never updated on Laura's appointment on this thread. Dr Wall confirmed sagittal cranio but he is confident it is non-syndromic. She has a CT scan booked for 10 March, and she is on the waiting list for a strip craniectomy sometime between April and July this year. We're very relieved, and she is coming on very well, especially her head control.