Sagittal Synostosis (Calling all teens and adults!)

[Funky-Ramones]

I hear alot about all types of Cranio, does anyone have Sagittal Synostosis? I feel like i'm the only person! But I know i'm not! :shiftyeyes

It would be nice to see another person with the same thing as me!
Thanks!

[LauraCE]

I had sagital. I had surgery 33 yrs ago. My daughter Emily had sagital and had her surgery last February and is do great.

[Funky-Ramones]

Did you have Saggital Synostosis? I think to myself im the only person who has a head shape like mine!

[LauraCE]

I had. Emily's CFS says that my surgery in his opinion was a failure because I have a long narrow face and pinched temples. He also felt my head. If I had no hair which pg I'll never experience my head would be a peculiar shape. I had my surgery at 3 weeks which in his opinion was too young as the sutures closed too quickly again but we are talking about 33 yrs ago surgery etc has progressed a lot in them years. Have you had surgery?

[Funky-Ramones]

Yes I did have surgery although I know very little ABOUT IT.

[Cherilyn]

I was born with Saggital Craniosynostosis. I had surgery 33 years ago as well, when I was 7 weeks old. I have a little bit of a strange head shape. My scar is right down the middle of my head and is indented so I would look very strange bald. My son just had surgery for his Saggital Craniosynostosis as well. We are both doing great!

[tux1982]

Hi I have sagital and metopic untreated!

[drita]

I have anterior sagital synostosis untreated!

[Funky-Ramones]

Is there anyway people with Scaphocephalic, well Sagittal, could help me out with swapping photos.. I know it sounds weird.. but I find myself on Google all the time looking for someone with my condition...

[jared]

Hi i have sagittal (i guess) and now i think i've posted my post in the wrong/not exact thread :shocked
Here it is http://www.craniokids.org/support/showthread.php?23375-Adult-with-untreated-Cranio../page3
I can send you those if you also give me your opinion my condition. (English is not my native languge, but i hope you understood me anyway) ;)

[Ryan S.]

I have treated Sagittal. Still noticeable though and very bumpy up top.....

[Ryan S.]

Hey Cherilyn,

I have the same scar and indention. I hope my hair stays lol......