View Full Version : Sensory Integration issues post surgery?
11-06-2011, 08:38 AM
Hi! I have a question, post surgery (we are 18 months out) and staring down the barrel of another (a week and a half!) we are experiencing some issues at school. Before surgery he was so mellow and easy going but now he is hyper, has difficulty at school and has been diagnosed with sensory integration disorder (he covers his ears with loud noises, can not go to a restaurant without headphones, can not handle crowds (so he cant participate in activities such as parties etc) Does anyone else see these changes?
11-06-2011, 04:32 PM
We did... My son is almost 4 years post-op for metopic cranio. He had lots of issues before surgery but after surgery he did great for about 15 months. Out of the blue a number of issues started popping up. It started with eye pain and headaches, followed by multiple sensory issues and very obvious behavioral changes, like you describe. My son had a regular CT, EEG and an MRI but they couldn't find anything wrong. According to his dr's, he didn't have the red flag symptoms for ICP, nor papilledema, so basically he had to learn to live with it and simply given painmeds for migraines whenever needed...Although my son's headaches come and go, the sensory issues never went away. He's currently on a waiting list for sensory integration therapy because the sensory issues are affecting his daily life.What does your son's dr say about his issues? Does he see a link between the issues and his cranio?
11-06-2011, 05:03 PM
My son doesn't have cranio, but we are dealing with some of the same issues, in our case it's food and textures (food and clothing) He is 12.5 years old but he is the size of a 8 or 9 year old. He is in therapy, but it's very frustrating, he only eats very plain foods and always the same things.
11-06-2011, 08:01 PM
My son also has sensory processing disorder (same thing, different name), though he showed signs before his surgery. He is very picky about food, has meltdowns in noisy over stimulating situations, etc. We literally can't go out in public with him, save for a few select places. It takes him days to calm down from situations like that and get back to his "normal". No eating out at restaurants, no parties or family dinners. It is frustrating to say the least.
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