View Full Version : Hello from Kansas
01-03-2008, 02:41 PM
My daughter Lily is 11months old (just yesterday). Our Dr. noticed her head shape immediately. She was also born sunny side up and was stuck for a while, so my partner and I were just hoping that's what is was.
We kept watching it and it didn't get better. As soon as Dr. Singhal looked at Lily, he started talking surgery. It was a hard day, but nothing like the past few days have been leading up to this surgery.
We are gearing up for surgery on Monday. We are going to Children's Mercy in Kansas City and Dr. Singhal is doing the operation.
I have been reading the message boards the past couple of days and am looking forward to getting to know more cranio parents. Thanks!
Bridget, mom to Lily 11 months, saggital cranio
Surgery scheduled for Monday 1/7/08
01-03-2008, 02:47 PM
:welcomeBridget....there are alot of saggital babies on here. You'll get all the support you need.
01-03-2008, 03:00 PM
Hi Bridget and welcome to this amazing site, as Janet said there is a lot of sagittal babes on here, my son is metopic, no surgery yet but hopefully not too long now, we will all be thinking and praying for your whole family on monday.xxx
01-03-2008, 03:48 PM
Hi And welcome this site is really great. Autumn just had surgery and she has saggital as well. She doing great. And so will your lil girl. It's really cool how kids bounce right back to there olds selfs after something like that. She will do great. And soon you'll be on the other side.
01-03-2008, 04:59 PM
Welcome to the boards! We will be wishing you all the best for your surgery.
01-03-2008, 09:07 PM
Welcome! Hang in there, you are almost there. Your little Lily will do amazingly well!
01-03-2008, 10:46 PM
Welcome Bridget! I am from Raymore, south of Kansas City. Where are you from???
We also looked into seeing Dr. Singhal, but he was booked out until May for consultations, and Quintin is already 8.5 mos old!! We have chosen to go to Dr. Fearon in Dallas. Our surgery date is Feb 19th. Quintin is metopic, not sagital. We did not even get a diagnosis until Quintin was 7 mos. old, so we don't have time to wait for an appt. with Dr. Singhal. How long did you have to wait to see him???
I have heard only wonderful things about Dr. Singhal. I have a friend who's child was operated on with sagital craniosnyostosis 9 years ago by Dr. Singhal. Her son is doing wonderfully now. Send me a private message if you are interested in getting her contact info if you want to speak to someone else who has used Dr. Singhal. She is very open to talking to other cranio moms. In fact, 2 of her 7 children have had sagital craniosynostosis.
Another of my friends had Dr. Singhal fixed her son's cleft pallet. She also really liked Dr. Singhal!
So, I think you are in good hands!! Nice to meet you! Hang in there...you're doing the best thing for your baby girl!
01-03-2008, 10:53 PM
Welcome to CK! Hope all goes well on Monday! You will be amazed. Cranio kiddos do so well. They are so strong. Soon you will be on the other side. We're pulling for ya! Keep us posted!
01-04-2008, 11:54 AM
Thanks so much for the warm welcome. It's so nice to hear people say you're almost to the other side, because all of Lily's life we have been waiting for this surgery and finally we'll be done with it.
Sadie, thanks for the info about your friend. I will pm for sure! I'm sorry to hear that you couldn't get into Dr. Singhal, but I'm glad that you got scheduled in Dallas. We live in Lawrence, KS but I"m from Kansas City.
When we originally got referred to Dr. Singhal, Lily was 6 months old and we had to wait about 3 months for an appointment. It didn't sit with our Dr. well so she called Dr. Singhal personally. Whatever she said got us in a month and a half sooner.
Lily gave us a scare last week and came down with something. She took antibiotics and is doing well. I took her back to the Dr. yesterday and they gave her an all clear for surgery. Now we just wait until Monday.
THanks again to everyone. This is truly a great site!
Bridget, partner to Terri, mom to Lily, 11 months
Saggital surgery scheduled for 1/7/08
01-04-2008, 11:59 AM
Welcome to CranioKids! This site is full of helpful information and a great outlet too. There are several little ones having surgery next week. I'll add your little Lily to my prayer list.
01-04-2008, 12:31 PM
Welcome to craniokids! My son had sagittal surgery last July. Best of luck on Monday, I will keep you and Lily in my prayers.
01-04-2008, 11:09 PM
Welcome! Best wishes for Monday :huggs
01-04-2008, 11:11 PM
I will be sending that info shortly. Meanwhile, we will be thinking of you and your family and your darling Lily! Good luck and be strong!!
01-04-2008, 11:51 PM
Hi and welcome to the site. Our son had surgery for sagital in June 2007 and is now 10 months old. We are in Australia so can't really comment on the doctors over there but generally all the sagital babies I know have bounced back really, really well. Bailey did and hasn't looked back. He was his old self after 2 weeks and was smiling after 5 days. It is an amazing experience after the sugery as it feels like every smile etc is like their first all over again. Not sure if that makes sense...but they do recover really quickly. Good luck for Monday...will be thinking of you. xox
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