sky16cb
12-02-2007, 09:02 PM
Autumn Maries Jones was born On July 30 2007 at 10:52 pm. She was two weeks late, she was born emergency c-section. Her heart rate was dropping. But when she was born she came out yelling all 9 pounds 1 oz 22 inch long. http://s163.photobucket.com/albums/t295/sky16cb/th_AutumnMarie004.jpghttp://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0205.jpg
For the first two weeks we didn't know any thing about cranio. It wasn't untill my ped's doc told me at her two week check up that she might have cranio. And my heart stoped when he said she might have to have surgery. They first thing I felt is what did I do wrong. My poor baby. Well he wanted us to wait till she was a month old to go see the Dr. Girotto(plastic Surgenon). When her 1 month check came he told us to call and make an appt. Cause he said she dose have cranio by the shape of her head. And after he told us that she might have cranio you chould tell by the way her head looked like an egg.http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0323.jpg
So we meet with Dr. Girotto he was really nice and careing and told me he did alot of these. And would be teaming up with the neurosurgery(Dr. Silberstein). And she would be sent in or a Ct scan, but he already know that her saggital suture is closed.
So on Oct 1. at 5 am we went in for the CT scan. And that was really hard. But she did great. ANd then next few days where hell waiting to see what they said. But we got the call to come meet with the team and they told us that she dose have her saggital suture closed. But it's not all the way closed. From the bottom of head to the middle of the head is closed and the front is open. So they will cut her from ear to ear. And she will be in a helmet for an year maybe less.
The nest few days kidda went by so fast. Nest thing I know we have a date set for surgery. Nov 1 at 8 am.
well that day came and we got up and got every thing ready to go Golisano Children's Hospital. We got there and they took us rigth back and got her weight and temp. And then we meet with Dr.silberstein, Dr. Girotto before they took her back. At that point I was holding on to her for dear life. But when the time came the team came out and said they are ready to take her back. Wehn I hand her off to them my heart broke. Mind you this is the first time I really have been away for her snice she was born. I creid my husband held me. we went and got something to eat and then went back and waited.
When it was +over and done with they came out and told us every thing went fine and she was in the PIUC waiting for us.
So when we go the floor all I chould hear was this high pitch yell and I told my husband someone baby is not happy. Then when we go to the room I found out it was her. It's just didn't sound like my little girl. And then I saw what she looked like. ANd I broke down again. They kept give her pain meds. And one doc saod she had to much but she still seem liked she was in pain. I kept telling them all you have to do is pick her up and she's stop crying. They only thing that made me mad the whole time is they won't let me pick her up right away. she kept crying and crying ansd I didn't care anymore I picked her up with all her wires. and after tens mins of rocking she was sleeping.
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0410.jpg
The first night we didn't stay. They told us to go home and get some sleep. we did but only 5 hours. I was up and out the door at 4 am. They nest day she was off the pain killers and on tylnel. She was awake eatting
pooping. They said she would swell really bad.http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0414.jpg
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0423.jpg
But all day only one side swelled. They moved us to the step down ICU. Which they call the step away for home. We watched the sweeling go down stayed the night there and the next day we where out and on out way home.
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0436.jpg
Today is 1 month and 1 day post-op. I'm glad to have the surgery behind us. I'm sitting here crying as I am writeing this. All the feeling are comeing back to me now. But still have a long road ahead of us with the helmet.
For the first two weeks we didn't know any thing about cranio. It wasn't untill my ped's doc told me at her two week check up that she might have cranio. And my heart stoped when he said she might have to have surgery. They first thing I felt is what did I do wrong. My poor baby. Well he wanted us to wait till she was a month old to go see the Dr. Girotto(plastic Surgenon). When her 1 month check came he told us to call and make an appt. Cause he said she dose have cranio by the shape of her head. And after he told us that she might have cranio you chould tell by the way her head looked like an egg.http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0323.jpg
So we meet with Dr. Girotto he was really nice and careing and told me he did alot of these. And would be teaming up with the neurosurgery(Dr. Silberstein). And she would be sent in or a Ct scan, but he already know that her saggital suture is closed.
So on Oct 1. at 5 am we went in for the CT scan. And that was really hard. But she did great. ANd then next few days where hell waiting to see what they said. But we got the call to come meet with the team and they told us that she dose have her saggital suture closed. But it's not all the way closed. From the bottom of head to the middle of the head is closed and the front is open. So they will cut her from ear to ear. And she will be in a helmet for an year maybe less.
The nest few days kidda went by so fast. Nest thing I know we have a date set for surgery. Nov 1 at 8 am.
well that day came and we got up and got every thing ready to go Golisano Children's Hospital. We got there and they took us rigth back and got her weight and temp. And then we meet with Dr.silberstein, Dr. Girotto before they took her back. At that point I was holding on to her for dear life. But when the time came the team came out and said they are ready to take her back. Wehn I hand her off to them my heart broke. Mind you this is the first time I really have been away for her snice she was born. I creid my husband held me. we went and got something to eat and then went back and waited.
When it was +over and done with they came out and told us every thing went fine and she was in the PIUC waiting for us.
So when we go the floor all I chould hear was this high pitch yell and I told my husband someone baby is not happy. Then when we go to the room I found out it was her. It's just didn't sound like my little girl. And then I saw what she looked like. ANd I broke down again. They kept give her pain meds. And one doc saod she had to much but she still seem liked she was in pain. I kept telling them all you have to do is pick her up and she's stop crying. They only thing that made me mad the whole time is they won't let me pick her up right away. she kept crying and crying ansd I didn't care anymore I picked her up with all her wires. and after tens mins of rocking she was sleeping.
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0410.jpg
The first night we didn't stay. They told us to go home and get some sleep. we did but only 5 hours. I was up and out the door at 4 am. They nest day she was off the pain killers and on tylnel. She was awake eatting
pooping. They said she would swell really bad.http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0414.jpg
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0423.jpg
But all day only one side swelled. They moved us to the step down ICU. Which they call the step away for home. We watched the sweeling go down stayed the night there and the next day we where out and on out way home.
http://s163.photobucket.com/albums/t295/sky16cb/th_Picture_0436.jpg
Today is 1 month and 1 day post-op. I'm glad to have the surgery behind us. I'm sitting here crying as I am writeing this. All the feeling are comeing back to me now. But still have a long road ahead of us with the helmet.