HeatherR
05-03-2011, 08:30 PM
hi everyone!
i was on here quite a bit several weeks ago when my daughter was diagnosed with coronal craniosynostosis and i want to thank you all so much for your information, encouragement, and support. you were all so helpful to me at a time when i really needed it. i haven't been around as much lately because i kind of felt like i needed to distance myself from thinking about things too much when i had months to wait for surgery. it was just too upsetting to me. anyhow... i just wanted to make sure everyone knew how much i appreciated the help that was given and i look forward to reading more about your stories along with all the other information that's been posted here!
with that said, after checking around, we decided to have our surgery at rainbow babies in cleveland with dr. gosain (CF plastic) and dr. cohen (NS). my daughter's surgery is scheduled for june 7th so we're nearing the one month mark. deep breaths. she'll be just over 10 months at the time of the surgery.
heather
i was on here quite a bit several weeks ago when my daughter was diagnosed with coronal craniosynostosis and i want to thank you all so much for your information, encouragement, and support. you were all so helpful to me at a time when i really needed it. i haven't been around as much lately because i kind of felt like i needed to distance myself from thinking about things too much when i had months to wait for surgery. it was just too upsetting to me. anyhow... i just wanted to make sure everyone knew how much i appreciated the help that was given and i look forward to reading more about your stories along with all the other information that's been posted here!
with that said, after checking around, we decided to have our surgery at rainbow babies in cleveland with dr. gosain (CF plastic) and dr. cohen (NS). my daughter's surgery is scheduled for june 7th so we're nearing the one month mark. deep breaths. she'll be just over 10 months at the time of the surgery.
heather