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Kaitlynn's Mommy
11-10-2007, 05:28 PM
Hello ladies, I thought I'd post our story for you! :)

It all started when I went into labor 2 days before our scheduled c-section. I tried all I could to get the contractions to stop, but of course, my little girl didn't want to wait! (Neither did her sister! LOL!) When we got to the hospital I was monitered for about an hour when our doc came in and said well let's do this thing! LOL! He said I'll see you in the OR in about an hour. So at 9:59am on Sat. August 25, 2007, little miss Kaitlynn Elizabeth made her entrance into the world. Our nurse staff noticed her lack of soft spot before I'd even been sewed up and brough back to the room for my recovory. I thank that nurse every single day! She informed my husband and the other nurses on staff. We had to wait until the next morning of course before our doctor was informed because he had an emergency and left the hospital shortly after our c-section.

So thus began our wait! He came in on Sun. morning to tell us that indeed he couldn't feel a soft spot either. He said that he was ordering X-ray's be done first thing Mon. morning, and he gave us a name of what he thought could be wrong. Of course our minds were so blurred from everything he'd said before I don't even remember what he said it was. We couldn't even tell our family what they though she had. So we waited some more!

The nurse came in about 7 am on Monday morning to take Kaitlynn away for her X-rays. DH wasn't even awake yet, and he didn't wake up until after she'd been back 20 minutes! LOL! So then we waited to see what the radiologist said and we didn't hear from him until about 2:30 again when they said they wanted to do a CT scan to confirm what they thought. About 6 that night our doc came in and told us that her sutures were closed and she had Craniosynostosis. ( I couldn't spell that for ever, but now I've gotten the hang of it! :))

We then were refered to a Neurosurgen and told they would call us, and sent home. About a week later we were sitting in Omaha in the Neurosurgen's office. He said that infact she did have Cranio, and she had Saggital Craniosynostosis. We have since been to a Craniofacial Clinic and meet with our plastic surgon. We do not have a surgery date set yet, but we do know it will be shortly after christmas and new years!

(I'm at the inlaws, and don't have any pics so I'll post them when I get home ! :))


Here are our pics I promised!

A few days old

http://i179.photobucket.com/albums/w317/jacastfamily/KaitlynnElizabeth102.jpg

Almost 1/2 mo old

http://i179.photobucket.com/albums/w317/jacastfamily/October2009.jpg

sarahob
11-10-2007, 06:40 PM
Welcome to CranioKids! I look forward to learning more about you and Kaitlynn. My son Gavin had surgery for saggital 2 1/2 weeks ago and he is doing great.

my_angel_kenley_grace
11-10-2007, 08:09 PM
It's great to see your story. Our daughter had surgery for Saggital Cranio on June 13th and she is doing great! I think that the wait for surgery was the toughest part. That and not knowing what to expect. But you are in the right place to have any questions that you might have answered. I can't wait to see the photos. :o)

Amy K
11-10-2007, 09:57 PM
We have similar stories...I had a c-sec and my doc diagnosed my son as soon as he pulled him out of me...had ct scan the next day that confirmed. And we are also having surgery in Jan.! He will be just over 4 months old.

jenniferh
11-10-2007, 10:44 PM
Welcome to craniokids. I'm glad that you found us. My daughter, Addison, had surgery for her sagittal cranio in Aug. I look forward to getting to know you better. WELCOME

Koops
11-11-2007, 07:38 AM
Hi-it is a scary time for you but just know that the doctors know what they are doing. Our son had his op in June and I don't actually remember much pre-op! It was a long wait and I kept saying "I wish it was July and all over." I felt awful that I was hurrying time and my son's life along but it was really hanging over our heads. It feels like a lifetime ago now and everyone is amazed at how well he has recovered (and us) and how good his head and scar look. Just remember it is much harder for us (although it may not seem it looking at them in hospital) and they don't remember anything. Your baby will be fine and this site is so good and a wonderful support. I just wish I had found it pre-op. Take care and keep us posted.

charliesmummy
11-11-2007, 08:05 AM
Thank you for sharing your story. My little boy had surgery for Metopic cranio 9 weeks ago and he is doing fantasticly. This site was my lifeline, i really dont know what ide have done without all the support from these wonderful people. We are all here to help eachother so if you have any questions please ask away, there is always someone to help. Welcome again xx