View Full Version : new and need feedback
11-08-2007, 05:15 PM
hello, my baby may have cranio, but the dr's arent listening. i'm looking for advice or to hear from others who have had similar experiences.
my son is 3 1/2 months old. yesterday the general dr said his front fontenelles have closed but that its is okay. to my understanding they should not close until 13 months. my son s head circumference was at the 10% mark when he was born and now its at the 3rd. his height has grown from the 25th to 50th percentile, while his head is losing percentile. his head has had the same measurement for 3 weeks now. he seems developentally okay and does not seem deformed although his head seems to be slanting somewhat downward towards his forehead nowand is relatively flat in the back. the dr is taking a wait and see approach. i'm totally out of my mind with worry. does any one have any feedback for me. thanks, sasha
11-08-2007, 05:27 PM
Please let us know what area of the country you are in, someone here may be able to recommend a good doctor in your area for a second opinion.
Your child's head should show some growth for the past 3 weeks..not much but some. Does your child spend a lot of time on his back? 3 1/2 mnths to me seems early for a child to display Plagio. I could be wrong though. Is the flatness in the center of the back of his head or more so on one side or the other?
Best wishes to you. You are the best advocate for your son.
Dawn (mom to Cole, 27 mths old. almost 21 mths post op, sagittal synostosis and both coronal synostosis)
11-08-2007, 05:37 PM
his head does not show asymmetry, and he doesnt spend much time on his back. Can you define plagio for me? thanks dawn.
11-08-2007, 09:05 PM
Could you possibly show us a picture of him - we may be able to help with that more.
I can understand how worrying it must be for you, but you are doing the right thing by researching aswell. Can you go to a paedeatrician in your area - sometimes they can be more helpful than gp's. We're here for support so don't be afraid to ask anything!
11-08-2007, 09:45 PM
Alakai's head just recently stopped growing so the slant is not severe. We scheduled an appointment with another pediatrician in the same office tomorrow and I'm going to request a scan. I dont know how they can not be concerned with the fontenelle closing at 3 months. I'd rather err on the side of caution! Thanks for your replies, Sasha
11-08-2007, 11:21 PM
He looks gorgeous and I know how you are feeling. Try and see a cranio doctor as they are the experts. It is there field and see issues all the time. Take care and keep in touch.
11-08-2007, 11:27 PM
Welcome to the site. I'm glad you've found us. I would say trust your mommy instinct and insist on a scan. The most important thing though is to have the scan read by a specialist who deals with cranio. There is no reason to wait and see- if he does have cranio it's not going to go away on it's own- better to give you time to plan a course of action. I would request to be referred to a nuerosurgeon who handles cranio cases on a regular basis. Good luck w/ your next appointment and keep us posted.
11-09-2007, 01:10 AM
Do I need a referal to see a "Cranio Doctor"?
11-09-2007, 05:10 AM
Go with your gut as that's what nearly all of us have had to do on here. We had a real fight with our local health service & it took us until Charlie was 8 months to finally get him refered! I think motherly instincs the best so if you think he's not quite right then seek a second opinion from a cranio specialist. You son is gorgeous x
11-09-2007, 06:05 AM
Hi Sasha and welcome to the group, your son is gorgeous, and i think like the others have said, stick with your gut instinct and get another referal, his head does look quite flat at the back and i can see the slanting at the front, i would def seek another referal.xx
11-09-2007, 10:20 AM
Hi and welcome to the site! I don't have much advice for you other than to push for the CT scan. Don't ignore that motherly instinct. ;)
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