View Full Version : Not CRANIO!!
11-07-2007, 04:50 PM
Well we finally got to see a neurologist and a neurosurgeon and had a CT done, the CT showed that she either has microcephaly or cerebral atrophy and neither are related to cranio. So, it's good news in a way, but now we face a whole different avenue of problems. If it's microcephaly then she will be developmentally and mentally delayed because of the area where the brain is under developed, if it's cerebral atrophy we were told the rate at which it's happening she has a 15% chance of making it to five years old. To be honest, I would have taken cranio because I know it can be fixed.
You are some strong women and I admire your strength and dedication to your families and children, stay that way, if we don't fight for our kids, no one else will either. It's because of the support I received from you ladies that I pushed for her to be seen, and it's a good thing I did. Thank you all so very much!:hugg :hugg
11-07-2007, 04:55 PM
:hugg Oh Leci, im please it's not cranio but im very sorry to hear of the other possibilities you may now be facing. Please please stay with us & keep us informed on Kara as you are part of our little family now. Big Big hugs for you both :hugg
11-07-2007, 04:55 PM
OMG Leci....my heart is breaking for you. I pray to god it's not cerebral atrophy. When do you find out exactly what it is?
I think that this place is such a srong support system for some many of us, and it makes us stronger. I know for a fact that I couldn't have gone through the surgery without all of you. Were here for you Leci. :hugg :hugg
11-07-2007, 04:59 PM
I really appreciate the support. She is scheduled for an MRI next Tuesday and we should have the results in a day or two, so by the latest next Friday. Her metopic suture is fused but not due to cranio, it's due to the lack of brain growth in her frontal lobes. The doctors feel like her other sutures may be beginning to fuse as well, but all will be seen and told when the MRI gets done.
11-07-2007, 05:00 PM
Please let us know when you know the results. I just cant possibly imagine what you are going through. I will be praying & praying for your little Kara xx
11-07-2007, 05:08 PM
It is our love for our children that strenthens all of us. You are strong too! Our family is pulling for you. Please keep us up to date, we're here to be a sounding board and a place to vent. Our prayers are with you.
Sam (Pocket's mom), mentioned atrophy in one of her latests posts, maybe you guys could compare notes? Maybe there are other possibilities?
11-07-2007, 09:26 PM
I'm so sorry to hear what you are now dealing with. You and Kara are in our prayers. Please be sure to keep us updated.
11-07-2007, 11:02 PM
Oh Leci, I hope that everything works out for the best. I realize it's not cranio, but please stop in and let us know how things are going :hugg
11-08-2007, 03:43 AM
Leci, im so sorry to hear what you are dealing with now, my thoughts and prayers are with you, please keep us updated and any of these test results. xxx
11-09-2007, 12:23 PM
I am sorry you are going through such a scare. I will keep your family in prayers & thoughts. Please keep us updated. Love, Valentine
11-09-2007, 12:37 PM
I'm so very sorry for your recent news. I will keep you and Kara in my prayers. Please do keep us updated. (((hugs)))
11-11-2007, 03:52 PM
I really hope everything goes well for you. Stay strong and please keep us updated on how everything goes.
11-11-2007, 05:20 PM
Leci, you are certainly in my prayers. I can't imagine what is going on in your mind! Please stay with us, as we will definitely want to know what's going on!
11-12-2007, 05:10 PM
:hugg's, :hugg's and more :hugg's I am so glad you have some answers, but so sorry what you are being faced with. I will say many prayers for you all. Please stick around- you are part of the family and we want to be able to be here for you!
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