Roman on cover of CAPPSKIDS brochure!

[Roman's Mom]

Hi there,

Just thought I'd share the news that a photo of my son Roman was chosen to be on the cover of CAPPSKIDS new brochure about craniosynostosis!

They will be distributed to neurosurgeon/crainiofacial centers, health fairs, and pediatricians offices around the country. Yeah for awareness!

I wish your craniokids website could be on the brochure too, since the support here really helped me, but as far as non-profit organizations go, www.cappskids.org is great (they sent him a free blanket, etc.).

See pics of the brochure in my photo album.

Such a lovely surprise. It's nice to think that somewhere someday someone is going to pick up that brochure and see the photo of my son and the other babies and read about cranio, that could lead to an early diagnosis for their child and put them on the road to surgery and recovery and healing. Feels good to be able to "pay it forward" in some small way.

:yipee

[Lauren]

That's great! Any awareness is great! I agree, it would have been nice for Amy to include this site but really all that matters is that the info gets out there. Parents will find us quickly enough if they are researching cranio though.

[Jenny]

Oh how fun! You must be one proud momma! :adore

CranioKids is also a nonprofit as well. It would have been nice to be included, but like Lauren said, we are easily searchable as well.

[SummerEhmann]

So cool!

[AJ's Mommy]

Love it!!!

[jjmc123]

Yeah for Roman!

Logan is on their flyer & postcard. I have them displayed at work and tell people about cranio when they come in my office.

[Janet]

Way to go Roman :adore
Cranio kids is more of a support board....hense the over 3000 members.

[tracy_girl05]

yay thats great!!!! I would love a copy- how can i get one?

[Roman's Mom]

Thanks guys! Ya, I just had to boast for a minute. ; ) Tee hee. He is also featured on their website under the Blankets for Babies order page, etc. : )

You can print them off yourself for free from their website: http://www.cappskids.org/Print-and-Share-Info.html and there is also an "Awareness Package" that you just pay shipping for-I think she's currently working on getting the brochures printed on nice glossy paper right now (the photo next to the awareness package is of an old flyer and doesn't show the new brochure yet, so I'm not totally sure if the new brochures are ready to be purchased yet? I asked, but she hasn't responded yet.)

And yes, your craniokids website is fairly easily found by doing a "craniosynostosis message board" search, so hopefully parents can find it ok. I didn't realize this was also a non-profit organization, but I guess the focus is more on the message board support. ; )