nicandkee
01-03-2011, 07:51 PM
Hi,
If you remember, Ainsley is a mild metopic with partial sagittal fusion. In August, she developed a step along her coronals, which has now turned into a slight dip and then a step. He head shape, disposition, and development are great.
In August, she had a month-long unhappy stretch that I was concerned about and I took her to her CFS. After I asked lots of questions (trying to get answers about what was going on with her coronals), CFS recommended a CT.
Since October, Ainsley has been the happiest baby that I know, so at this point, I dont really have concerns. I'd rather not do the CT unless things get worse (head shape or disposition).
I didn't want to go against what the CFS recommended without some back-up, so I got another opinion. We saw Dr. Urata at LA Children's today. He was really nice. He did not see a reason for a CT. Essentially, while the CT might help us understand what is going on, it would probably just tell us that she has a fused metopic and partially fused sagittal - and nothing would come of it. He couldn't imagine a dr operating on her because her head shape and size are fine. So why do it if nothing will come of it.
Dr. Urata said that the dip/step along the coronals could be normal and that they just don't know why these things happen. He also said that by 18 months (Ainsley's age) the brain/skull has done 70% of its growing, so it is unlikely to change much more. Dr. Urata thought ainsley had slight metopic presentation (slight narrowing) and no indication of a sagittal fusion (other than the ridge).
My plan is to just watch her head shape and disposition and if something happens, I'll deal with it then. Dr. Urata didnt think I had anything to worry about.
So, I was happy with the appointment.
Just thought I'd share the update.
If you remember, Ainsley is a mild metopic with partial sagittal fusion. In August, she developed a step along her coronals, which has now turned into a slight dip and then a step. He head shape, disposition, and development are great.
In August, she had a month-long unhappy stretch that I was concerned about and I took her to her CFS. After I asked lots of questions (trying to get answers about what was going on with her coronals), CFS recommended a CT.
Since October, Ainsley has been the happiest baby that I know, so at this point, I dont really have concerns. I'd rather not do the CT unless things get worse (head shape or disposition).
I didn't want to go against what the CFS recommended without some back-up, so I got another opinion. We saw Dr. Urata at LA Children's today. He was really nice. He did not see a reason for a CT. Essentially, while the CT might help us understand what is going on, it would probably just tell us that she has a fused metopic and partially fused sagittal - and nothing would come of it. He couldn't imagine a dr operating on her because her head shape and size are fine. So why do it if nothing will come of it.
Dr. Urata said that the dip/step along the coronals could be normal and that they just don't know why these things happen. He also said that by 18 months (Ainsley's age) the brain/skull has done 70% of its growing, so it is unlikely to change much more. Dr. Urata thought ainsley had slight metopic presentation (slight narrowing) and no indication of a sagittal fusion (other than the ridge).
My plan is to just watch her head shape and disposition and if something happens, I'll deal with it then. Dr. Urata didnt think I had anything to worry about.
So, I was happy with the appointment.
Just thought I'd share the update.