Fiona's update/surgery

[Janet]

Well we got a date September 26th, as long as there is a nurse for her in the ICU, if not then they will reschedule the date.
The p/s said that Fiona's case is moderate, they also found a cyst near her orbital bone which they are going to remove when they do the surgery. He also told us that Fiona has a "keel" (?) that's going into the dura so the surgery may last longer to prevent tears. We also found out that our blood doesn't match so I can't donate...alot of surprizes today!!!

[amommy22]

Aww... sorry to hear about your blood types. She will do great though! She is a little trooper! And she has your love and the prayers of many to help her through!! Lots of love to the little princess!

[Janet]

I'm going to pick up the CD of her scan next time we go to the hospital...you can see the cyst and the keel.

[Candice]

Wow Janet, lots of info to process! I'm interested to see her scans!

[charliesmummy]

Glad everything went ok Janet, with a few surprises though. How do you feel about getting a date at last? Whats a Keel? Looks like our little Metopics will be done and dusted by Sepember, Yipeee!! X

[Jennifer]

That is a lot of info. I would be frustrated with the 'as long as there is a nurse for her in the ICU' ....
Is the cyst noticible on the outside? I'd be interested in more info on the 'keel'....I've never heard of it. The positive though is that they know about it now and what they are getting into....I'd much rather them know about it then be suprised when they went in for surgery!

Can you add Fiona's surgery date to our calendar? Of course she and your entire family will be in our prayers. I know she will do awesome! :hugg

[Janet]

Jennifer....when the Doctor pointed out the cyst we could notice it, I thought it was just part of her skull. What the p/s told me was a keel is a little bit of bone that sticks into the dura it kind of looked like a "J" shape. When I get the scans in the next few weeks I'll show you guys.

[jessbee78]

Glad you finally have a date Janet - that must be a relief. We were told the same thing about having a nurse in the ICU. If there wasn't one we were going to be cancelled. Luckily it was really empty when surgery time came. You'll be fine - don't let that worry you.
Interesting about Fiona's keel - that's good they saw it and are going to be careful with it and the cyst too. Thanks for the info and letting us know how you got on.

[mayashekhina]

My goodness what alot of info to process- amazing how much you can learn. Im with Jenny Id be a bit frustrated about the nurse in ICU thing- Ive experienced delays because of this and it is no fun. We will be sure to keep you in our prayers and good thoughts here as well- I think she'll be fine it definitely sounds like she is in good and competant hands anyway- I always prefer the doctors who are willing to do their homework and err on the side of caution.

[jenniferh]

Janet,

I'm so sorry I'm just now seeing this post. I started back to work last Monday and life has been crazy. That sure was a lot of information to get at one time, but I am glad that you have a date set. Addie and I are sending big hugs your way!:hugg We will be thinking of you often. My students come back on Monday, so I'm sure I will not be able to be on the board as often as I have this summer, but know that you will be in my thoughts and prayers.

[Momof2Boys]

I am glad they found the cyst and keel before the surgery. Now the doctors can be prepared. Stay strong. I know I would be nervous but just keep thinking you are doing what is best for her. Your little girl sounds like she is in good hands.

[snickers9246]

Janet! :hugg We didn't match for blood either and had to go to the blood bank. They're so careful now, it is upsetting, but she will be fine, you all will! :hugg

[craniomommynbaby]

Do any other family members have a matching blood type? We did not match Simon, so my sister and a couple of friends donated. If that will not work, then the blood banks are pretty safe nowadays.

As for the cyst, Simon developed one above his right ear after his surgery. When we have them fill in the defects, then they will remove the cyst at the same time. I had not heard of a keel before. Thanks for sharing.

[Janet]

They only check to see if the parents blood match, but my husband was not allowed to try because he lived in the Uk in the 80's...the whole mad cow scare...he's not allowed to donate blood in Canada.

[xl1200c]

Janet,

Seems like you are making really great progress, and that your drs. are very knowledgable and good at explaining things. I'm glad for you of that. Keep us updated! Thinking of you.

Cathy

[KALEMSMOM]

Oh my Janet, I just saw this tonight!!! I'm sorry you have all these surprises to face. You are definitely in the right hands. I'm glad to hear you finally have a date set. Hang in there!!! You know my number.

[Candice]

Ah Janet, I was wondering about your hubby but didn't want a pry. I guess that was one of the questions they asked me before I was allowed to donate. That is a bummer that your other family members or friends don't have the opportunity to donate, but Tracey is so right, they do run that blood through a ringer of tests and everything will be great.:icon_mrgr BTW, I'm loving your new pic of Miss Fiona, it's hard to imagine that she will be even more beautiful than she already is!