New, need advice

[Annie]

My son Timothy <HR style="COLOR: #d1d1e1" SIZE=1><!-- / icon and title --><!-- message -->Hi everyone,

My name is Annie. My son Timothy who is now 2 1/2 months old was diagnosed with Sagittal Craniosynotosis when he was one month old. He was born on May 30th, 2007.

He will be doing surgery at the end of this month when he's 3 months. I have seen the surgery pictures online, and read the stories. I am so scared for my baby. Need the support and prayers of this support group.
Does anyone have a child who had this type of Cranio?
I also have a daughter, she is 4 1/2 no Cranio.

Thanks
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[charliesmummy]

:welcome

Hi Annie, just wanted to say welcome. My son is having surgery also in 2 weeks time, he's metopic though. You have found a great site here and there are lots of wonderful people who can give you support and advice. Good luck with the surgery x

[Annie]

Hi Jacqui:

Thanks, all we can do is pray. Good luck with Charlie's surgery as well. God Bless.

[Janet]

Hi Annie....:colors, there are a lot of childen on here who has had the surgery that your baby is going to have, my daughter is metopic, she has not had her surgery yet, I know how you feel...it so scary to think of your baby having this done. I'm sure that you'll get a ton of great advice on here. :hugg

[jenniferh]

Hi Annie, my daughter, Addie just had surgery for sagital cranio around 1 1/2 weeks ago. She is doing great. I know how nervous you must be, I was a wreck. Everything will go great. If you have any questions or need anything feel free to e-mail or private message me. Best wishes and prayers headed your way. WELCOME!

[Jennifer]

Prayers and support are here for you! This is such a scary time, it helps to talk to people who have been through it or are going through it--- we really know how you feel. I have a coronal baby, so can't help w/ specifics on the saggital...but there are saggital moms in the group. Please feel free to ask all the questions you want. Also, please mark Timothy's surgery date on the calendar. We seem to have a lot of babies with surgery coming up these next few weeks.....it will help us remember. Welcome to the group!

[Annie]

Thanks u guys,

It makes me feel much better, knowing there is so much support and prayer coming from special people who can identify with you. Thanks so much for your prayers and i'll also keep u all in mine. The Doctor will confirm with me the date for Timothy's surgery soon, i'll psot the date as soon as i confirm it.

God Bless

[Rhonda O]

Hi Annie, welcome to the site! I remember how scared I was during the time before surgery. My son Zachary had surgery for sagittal in August 2004 when he was 4 1/2 months old. He is now 3 years old and is doing great. I would love to answer any questions that you have and help you through this.

[mom2zach]

Hi. My son will be having surgery for Sagittal at the end of Sept. He will be 4 1/2 months old. You've found a great site for support and advice!
: )

[amommy22]

Hi Annie!! I am new here myself, but from the few days I have been on I have gotten more support and encouragement from these other women i have never met then anyone else the past few months since my sons ped mentioned cranio for the first time. Its a great place to bounce thoughts and experiences off of.... to help feel validated in your feelings and concern!! Welcome to the group!!

[Annie]

Ooops, I just remember you did say Zachary would do the surgery in September, and he'll be 4 1/2 months. By then Timothy would have had his, i'll keep u posted and in my prayers.

Annie

[Candice]

:colors This is a great place for you to be!! My daughter Kendall had surgery for Sagittal Cranio 3 weeks ago and she is doing AMAZINGLY well. I am so pleased, and she has really bounced back. These little ones are so resiliant and you will hear that time and time again from everyone. I really think that the bubs do better than the parents! Let me know if you have any questions or if you'd like to see any pics!

[Lori]

Welcome Annie. My grandson had surgery for sagittal cranio at 7 mo of age. He is one today! ..and he is doing wonderful. His daddy, my son, had the same surgery at 6 weeks of age. It is the most frightening thing I have ever endured, and still have moments. Someone wrote that the validation helps. I know this is what helped me. There is ALOT of POWER in the prayers and genuine love for the children and families here.

[laurensmom]

Welcome Annie..from what i'm told the earlier the better. You guys will be fine and it'll be over with soon. My thoughts and prayers are with you. Hang in there!!

[jessbee78]

Hi Annie, my son Logan had saggital surgery 7 weeks ago now. It is a tough time, but the results are amazing - they are like new babies both inside and out! I have put some pics of Logan's before and after in the testing and surgery section. Everyone is fantastic here so don't be afraid to ask anything at all!

[Annie]

Thanks alot for the support. It seems so far all the babies who had Sagittal Cranio, are doing really well, that's great news for me. It makes me feel so much better. How did Kendal cope after the surgery; like her sleep and play pattern etc. Also was she in pain alot? Sure i would love to see pictures. Prayers r with u always.

Annie


:colors This is a great place for you to be!! My daughter Kendall had surgery for Sagittal Cranio 3 weeks ago and she is doing AMAZINGLY well. I am so pleased, and she has really bounced back. These little ones are so resiliant and you will hear that time and time again from everyone. I really think that the bubs do better than the parents! Let me know if you have any questions or if you'd like to see any pics!

[Annie]

Your babies are so beautiful.

Annie

[Annie]

I feel so much better knowing that all this love and support is available for us Cranio Moms, Dads and Grandparents.
Wow it must have been hard to go through all of that. But through it all we know that God is able.

Thanks for the prayers and encouragement, as we continue to lift each other up. God Bless


Welcome Annie. My grandson had surgery for sagittal cranio at 7 mo of age. He is one today! ..and he is doing wonderful. His daddy, my son, had the same surgery at 6 weeks of age. It is the most frightening thing I have ever endured, and still have moments. Someone wrote that the validation helps. I know this is what helped me. There is ALOT of POWER in the prayers and genuine love for the children and families here.

[Annie]

Thanks, that's what i've been told by the Doctors that the earlier the better, and yes it will be over soon.

Thanks alot. Praying always.
Annie


Welcome Annie..from what i'm told the earlier the better. You guys will be fine and it'll be over with soon. My thoughts and prayers are with you. Hang in there!!

[Annie]

Thanks, i'll definitely look at the pictures so i'll be more aware of what Timothy will go through. Yes, i know everyone here is so wonderful and supportive. Thanks again.


Hi Annie, my son Logan had saggital surgery 7 weeks ago now. It is a tough time, but the results are amazing - they are like new babies both inside and out! I have put some pics of Logan's before and after in the testing and surgery section. Everyone is fantastic here so don't be afraid to ask anything at all!