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xl1200c
08-11-2007, 03:16 PM
I recently came upon this website. It has sample, rotating, 3D CT scan images of a "normal" head, plus scans of 5 different kinds of craniosysnostosis.

http://www.cincinnatichildrens.org/health/info/craniofacial/diagnose/

I thought it was useful in making a comparison. (I don't mean to include the link as an endorsement of the facility, just as a source of interesting information, I hope that's ok.)

I still think my son's head doesn't look normal. I would welcome comments on his CT scan in my other thread "test say ok, CT enclosed" if you care to have a look. Radiologist said it was fine but we are seeing a neurosurgeon anyway.

Hope everyone is having a good day.

Cathy

charliesmummy
08-11-2007, 05:04 PM
Hi Cathy
Thanks for that it was really interesting. My son is Metopic so it was nice to see a sample image and then what his sutures should have looked like. In my opinion after looking at these images i would say you are right to get a second opinion as there is clearly no Metopic suture on your scans. Follow your gut, i hope it all works out for you x

jenniferh
08-11-2007, 09:53 PM
Very cool site! Thanks for sharing. I hope everything goes well with your neurosurgeon appt. Keep us updated :)

mayashekhina
08-11-2007, 10:16 PM
I struggle with this, I mean I know it is interesting but as someone who has experienced information overload, I have to realise I am not a trained radiologist, and thus looking at these pictures though interesting from a technology point of view, it is meaningless to me. I mean they show me Beths head and point out the concerns I can only just dumbly nod and trust that they have been properly trained to detect the proper concerns. I can vaguely imagine what it is they are trying to show me but really it is too abstract an area for me with no training to really be able to decipher too much. which is why we have plastic surgeons and neuro surgeons who have a gammut load of experience in the field.

It is good what you are doing though- to go with your gut and get all your concerns cleared up with the doctors I have heard stories many times of this sort of thing being missed in the first examination only to be picked up by another doctor.

paynesmom
07-11-2009, 12:29 PM
bumping this...thanks for letting me know about this.

Terry17
07-11-2009, 12:51 PM
Thanks for sharing the info!!!!

Debbied
07-11-2009, 01:30 PM
Interesting to see the "normal" ct and the metopic one..Thanks for bumping this post up!
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Monica
07-11-2009, 01:47 PM
That was cool for me too. It was initially posted before Florence was even born! Time flies!

paynesmom
07-11-2009, 01:56 PM
I still can't find a picture to compare the one picture of Payne's that shows the thickness between his eyes. I'll keep looking.