View Full Version : Families in So. Cal, Syndromes
08-05-2007, 04:24 PM
We live in Southern California and we are looking for other families that have gone through or will be going through similar surgeries for these craniofacial syndromes. Our son has Crouzon-Pfeiffer Syndrome and is almost 2 yrs old.
We are having a Southern California get together coming up.
Aug. 18, 2007 in Los Angeles. Email me for more info.
Would love to meet other families, Dawn
08-05-2007, 11:01 PM
I'd be interested but its way to short notice for us. Hope you have a great time though!
08-05-2007, 11:48 PM
I will let you know when the next one is planned. Probably will be in April or May. This is our first get together and we have plans for meeting up 2 times a year, possibly more. Word is spreading and we have 6 families that are for sure coming and 5 more families that are thinking about it.
08-17-2007, 03:30 AM
Last March I was looking for moms and their kids because i was going to be in Los Angeles with my family until May. I wanted to meet other families and children with syndromes but unfortunately I did not get any responses then. Maybe April or May of 2008 we will be going there again and it would be nice to meet you.
08-19-2007, 01:47 PM
We had a nice turn out yesterday in Los Angeles. We are planning another one soon. Trying to get together several times a year.
We are going to have a little get together in San Diego before Christmas and hopefully another one in Feb. and then another in May.
I will keep you posted.
08-19-2007, 01:48 PM
Oops, I meant to say we are hopefully having another get together in Feb. and May in Los Angeles
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