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JillysMama
07-12-2010, 11:32 AM
My daughter still has a little bit of pinched in area around her right eye. Our orthotist said this should go away on its own even after we take off the helmet. Have any of you heard this and is it true? I'm just starting to get a little concerned that it won't go away. After all we've been through I want her to have the best outcome possible and the thought of another surgery makes me queasy. Please tell me someone out there has some reassurance. :pray
Sophia's_mom
07-13-2010, 05:53 PM
Be reassured! Sophie's head shape has continued to improve even after the helmet is off. Actually, it may just be me, but I've noticed the most change post helmet. I was a nervous wreck up until her one year post op check, but she got rave reviews and they anticipate her head shape to continue to improve even thru the next year.
JillysMama
07-13-2010, 06:44 PM
That's SO great to hear!!! I'm thrilled to hear you guys have had such a great outcome post helmet. Sophie is such a little cutie pie! She's gonna be a heart breaker!
*jules*
07-15-2010, 09:50 PM
I have no experience or advice, but just wanted to say I'm glad helmet therapy is going well. How much longer now?
CalinaLily
07-23-2010, 05:44 PM
I'm with Tessa -- Calina still has the tiniest bit of bossing on the sides of her forehead (so a little pinched in at her temples), but her surgeons say that's totally normal and that they're 100% happy with the outcome (considering the fact that they didn't get the chance to totally reshape her skull by hand themselves!). They're even going to use her as an example of what the endoscopic procedure is capable of, because she was such a severe case going in to surgery... it was sort of an experiment for them to do the endo on her.

Calina has actually had an overall "spurt" of head growth since her helmet came off -- her circumference had always hovered around 25%-50% for her age, and she shot up to 90% after her helmet therapy ended... I think it's definitely possible that post-helmet growth tends to be both significant and self-correcting. In fact, her 6-week followup scan showed that the tiny bit of asymmetry she had left (on her diagonal measurements) had completely corrected itself, AFTER she stopped wearing her helmet.

Good luck!