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KeegansMom
05-28-2010, 03:29 PM
We are 1 week post op today and I have a few concerns

1) Keegan still has diarrhea. Is this common? Doctor thought maybe the antibiotics affected him or he picked a bug up in the hospital.
2) He is VERY whiny. He was never one to whine and now he whines all day unless he is in your arms walking around, in the carseat or in his stroller moving.
3) He is not sleeping well at all. He has to be touching one of us at all times and even then sometimes wont settle
4)His eyes keep rolling back and I dont know if this is because he is SOO tired or if I should be concerned.
5) Has hydrocoele from all the fluids he received at the hospital

He has no fever and incisions looks great with little to no swelling everywhere.

Any help would be great!

Tara

BrendansMummy
05-28-2010, 04:30 PM
The runny poop we had for about a month post op. The whining is completely normal too.
The sleeping thing can take about 6 weeks to get better.
They just need lots of love, touching and cuddles for the next few weeks.
I cant imagine what it feels like inside their heads with the new shape.

It was almost like my son had post traumatic stress after being unable to see for 4 days

Lisa
05-28-2010, 06:33 PM
All of that sounds very typical. It can take weeks for them to get back to themselves. Just comfort him as much as you can. Don't worry about spoiling him, he needs reassurance and comforting from you now.

Shar
05-29-2010, 01:50 AM
We haven't had surgery, but I just wanted to say "hi"! We're here in AZ, too and using Dr. Shafron, too! Our CFS is not the same, but I've heard good things about yours. Don't you love Phx Children's Hosp? I hope your sweet little boy gets past these first weeks quickly. Before you know it you'll be 6 mo then 1 year post-op!

KeegansMom
05-29-2010, 12:32 PM
Phoenix Children's Hospital was amazing. I am so thankful that we were able to receive the care there. Not only did they take such great care of Keegan, but all of us as well. They care about their patients and between making sure he had toys and blankets and the therapy dogs, they try to make the kids as comfortable and happy as they can be (given the circumstances).

janda
05-29-2010, 08:54 PM
We also dealt with problems 1 through 3. My DS picked up a stomach bug in the hospital and had diarrhea for 3 weeks post-op. His sleep was horrible for at least 2 weeks - up every 2 hours or so. After a month we did sleep training with him because he had gotten to the point where he couldn't fall back asleep without a bottle (he was 5 months old).

And he was very, very clingy for about 2 weeks after the surgery. He normally has no preference between me and my husband but for that time he only wanted to be held by me and he wanted to be held all the time.

Perla
05-29-2010, 10:58 PM
Hi Tara,
I am glad all went well with Keegan.
All the symptoms you described sound normal to me.
The only thing I did not experienced was the eyes rolling back.

After the first week, they get some much better each day.

Good luck and keep us posted.

KeegansMom
05-30-2010, 04:10 PM
Thank you everyone!

I think he was just so tired that he would roll his eyes back because he isnt doing it now that he is resting more and he acted very tired when doing it.

Okay now another question :

He now has 2 swollen lymphnodes in the back of his head above his hair line near his ears. Is this normal with this surgery?