Has anyone else had to do this?

[punkrawkd0rk]

Has anyone else been sent by their peds to a neuorologist instead of a neurosurgeon? Because my ped did and thats a three hour drive? I would be pretty darn angry if it ends up being a wasted trip.

[Candice]

I hope you don't waste a trip hon! We were sent to see a neurosurgeon and plastic surgeon (specializing in craniofacial reconstruction) and it's at a children's hospital so they specialize in peds. Is there a children's hospital in NC or very near? I'm going to Denver and it's about 8 hours from where I'm at.

[cheryl2]

As far as I know, plastic surgeons and neurosurgeons work as a team to diagnose and treat cranio. We were never referred to a neurologist.

[punkrawkd0rk]

actually the hospital im going to is a childrens hospital. :( well its East Carolina University. But they have a pedatric center which is why I have to drive three hours to get there.

[Janet]

We were referred to the Cranio-facial clinic at Sick Kids hospital were we have seen a plastic-surgeon and a neuro-surgeon.

[punkrawkd0rk]

well, im going to call and bother the drs on monday and explain to them that I cannot afford to pay for the gas and the days off work to travel 3 hours for nothing. :) im going to be the biggest pain the their butts that they ever encountered until something gets done.

[mayashekhina]

That is probably the best approach, hopefully they can explain why the neurologist instead of the neurosurgeon if it wasnt a mistake.

[MikenAustinsMommy]

Shortly after Austin's birth, he was seen by a pediatric neurologist, because he was extracted by vacuum and they wanted to make sure there was no brain damage. The neurologist saw Austin 3 times and never once mentioned Craniosynostosis. He even said to give it time and Austin's head would round out.
The Pediatric PS and NS were the ones who diagnosed Austin.