Syndromes w/ Brain Tumors

[craniomommynbaby]

In the reading I have done on syndromes involving craniosynostosis, I cannot remember any that included brain tumors. I am wondering, though, because several people on the affected side of my family had or have brain tumors. Do any of you know which, if any syndromes, have this as a symptom?

[Jacksmum3]

No I have not heard this before. I was just wondering off the subject slightly, has your Genetasist done tests for Muenke Syndrome on you or your son or family for that matter?
Only from reading about it and from what my Genetasist has said about it is that 70% of unicoronal and Bicoronal children test possitive to the syndrome. Especially where family history is involved. He aslo said it can effect the metopic too but not as common.
Ask your Genetasist to do it if he has not already.
Have a read on it and there maybe, be some simalarities(sp).
Take care Annmarie x

[Jacksmum3]

Hi I thought this might interest you www.headlines.org.uk/HL15%20Muenke%20Syndrome.pdf (http://www.headlines.org.uk/HL15%20Muenke%20Syndrome.pdf) hope that works i will check it after i have posted it.

[craniomommynbaby]

Thanks for the link. It was interesting reading.

[mayashekhina]

Is there any other common symptoms besides the cranio and tumor? just the ,more info you can put together the better the picture it makes. There are just so many syndromes, disorders etc out there that can have similarities between each others the more symptoms you can group together the better and more accurate are the findings.