View Full Version : How long from diagnosis until surgery?
03-23-2010, 05:33 PM
How long did it take from the time your child was diagnosed until their surgery day? I'm trying to get a timeline in my head should Makayla need the surgery.
03-23-2010, 05:55 PM
Well Fiona was diagnosed at 4 months and had surgery at 10 months old....I had a long 6 months to wait, but that's when our surgeon likes to do the surgery.
03-23-2010, 06:14 PM
It depends on the age at diagnosis and the age your surgeon likes to do surgery. If a child is older when they are diagnosed, it can come up pretty fast. Or it can be a few months. My son was diagnosed when he was 10 days old and we waited a few months for surgery -- our surgeon wanted him to be big enough, but likes to do the surgery we had at around 4 months.
03-23-2010, 06:15 PM
My Gwendolyn was diagnosed at 2 months and our surgery will be when she's 10 months old (in July). Also in Gwen's case it's more about when the surgeon likes to do it, we were told she'd have better results and since she doesn't have cranial pressure it doesn't need to be right away.
03-23-2010, 06:34 PM
I knew something was wrong at 2 months, officially diagnosed at 5.5 months (after 3 months of waiting) and will be having surgery at 8.5 months.
03-23-2010, 09:20 PM
my son was diagnosed at 2 days old and had his surgery at 7 weeks old.
03-23-2010, 10:21 PM
Andrew was suspected by his pedi at 2 months. The suspicion was confirmed about a month later. First opinion docs wanted to do surgery at 6 months. We chose our second opinion docs which did surgery at 10 months. Because we liked our second opinion docs better we basically had an 8 month wait.
03-23-2010, 11:25 PM
We knew pretty much a few days after Adrian was born that he had Metopic Cranio and that he needed surgery. Adrian was alslo born with an additional little thumb on his left hand.
A surgery date was booked within a month of Adrian's birth.
FOA/CVR was done when Adrian was 8 months old
03-23-2010, 11:30 PM
Chase was diagnosed three weeks ago and we are tentatively scheduled for April 14th, he will be 3 months old
03-24-2010, 12:04 AM
Cameron was diagnosed hours after birth and will have surgery next month at 4 1/2 months old for sagittal.
03-24-2010, 08:12 AM
My son was officially diagnosed at 4 months and we will have his surgery this summer when he's 10 months. That's when our surgeon likes to do the surgery though. It really does depend on the surgeon I think...and if the child is older.
03-24-2010, 08:19 AM
We actually just started this topic on FB - I am going suture bu suture but if you look on yesterdays date you will see the varying ages for surgery.
03-24-2010, 08:48 AM
We saw the asymmetry at birth but Maya wasn't diagnosed until 5 months and had surgery at 8 months. The surgery was scheduled the day we were diagnosed before we even had our CT.
We knew at birth however definate diagnosis did not come until she was three months and we are still waiting on surgery. She will be +1 when the surgery happens. Its been a long wait but its meant that I have come to terms with it and I am very postitive about it (most of the time).
03-24-2010, 10:23 AM
cristovao was diagnosed at birth and surgery will be when he is 2 1/2 months old and 5 kg of weight. so early because its 2 sutures closed (bicoronal)
03-24-2010, 09:40 PM
I knew something was up the second I seen her born. She wasn't diagnosed til her 1 month appt though. Her surgery was at 5.5 months old.
03-24-2010, 10:23 PM
AJ was 4 months at diagnoses and he was in surgery at 8 months old.
03-28-2010, 04:02 PM
For us it was exactly 3 weeks to the day from the diagnosis to the operation (our op is this Tuesday...). Ollie will be 26 weeks old, so just over 6 months...
03-28-2010, 05:05 PM
we knew at birth something was "wrong" with Zara, she was officially diagnosed at about 3 months, and had her surgery at 16 months.
03-28-2010, 05:34 PM
Both of my sons were diagnosed at about 2 weeks (+-) and they both had surgery at 2 months old. jacob just turned 7 and sean is 5..
03-28-2010, 08:18 PM
Simon was diagnosed right after birth but had his first surgery at 6 months old for bicoronal.
03-28-2010, 09:23 PM
We were diagnosed at his 9 mo appt. Surgery was the day before he turned 11 months.
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