Still Trying to decide

[mayashekhina]

Hey all

Still interviewing different parents who have similarities to our situation, and Im no closer to a decision, I just have more questions- 4 pages worth.

I wanted to upload some photos of the shape of Beths head which may help explain why I am so torn over what would be in her best interests- remember I outlined her cardiac concerns in an earlier post- and as our appointment day draws closer I feel more and more lost I have no idea as to what direction to take. I am so anxious right now.:banghead

[Katie]

What a tough decision to make, I wish I had a solid answer to help make that decision. I think that once you get to your appointment, you will find that the Dr. (neurosurgeon or PS I assume?) will be completely honest with you about what path they feel would be best to take. they will help you weigh the risks of both having the surgery, and not having the surgery. I wish I had a better answer for you, I'm hoping that your appointment will actually help ease some of your concerns :hugg

[charliesmummy]

God it's a tough decision i wish i could give you some answeres too but unfortunately i cant. All i can say is write every little concern down and take them to your appointment and see if you get any answeres from the specialists. Whatever you decide i wish you all the luck in the world and i'll be thinking of you and your gorgeous little girl. Im sorry i couldnt have been more help xxx

[Jennifer]

Katie and Jacqui said exactly what I was feeling. Our NS was completely honest in what they would do and what they thought (ours has 4 kids though). Find out if they have children. If they do, given your situation, what would they do? Good luck. I hope your appointment gives you some relief. :hugg

[mayashekhina]

We will be meeting with both the neuro and plastic surgeon Next week on Friday 11th May (Sigh....) It has been such a long wait, we knew about Beths head shape before she was born but her heart had to always take precedence. Beth Turns 1 with her brother on 8th of May. On a positive she is a lot more stronger than she was when we had our initial consultation with the plastic surgeon.

Thanks for the great idea about the neuro surgeon I have been informed he is the same as Beths ENT doctor and if that is the case he definitely has kids.

[mayashekhina]

Oh and our new avatar is of us at White Water World! the kids had a blast. This thing has me so preoccupied Im supposed to be designing a crib sheet for hubbys essay exam on thursday and it is so hard to concentrate, Ive tried everything praying etc and i continue to tie myself up in knots for worrying over this, Mark is taking it so much cooler as far as he is concerned he wants Beth to have it done Im the one worrying over it.

[mayashekhina]

Hi guys
Well we just had a really good appointment with Beths cardiologist, Im feeling alot more positive towards the surgery, as long as the anesthatist converses with Bettys cardiac anesthetist and is well aware of what Betty needs to stay stable she should do well with the rest. Our nurse put it in such a good way today and that was how would Betty feel about it when she got to school and got picked on especially when she becomes a teenager because lets face it she does have a wonky head. Got home and found out my 11 year old had punched a kid in the head at school today because he was being paid out about the shape of his sisters head (sigh) seems like an odd sort of coincidence considering I dont believe in coincidence I think I am finally being given an answer as to the right direction to take.

[mayashekhina]

Oh and I did have a discussion with my son over the correct approach to take with some one who is just trying to wind him up- stay unwound and be witty! we had come backs like thats not what your mother said last night(c/o daddy) or have you looked in the mirror lately?

[Jacksmum3]

Very good come back that one, good old Daddy. Kids can be sooo cruel can't they?
Just a shame they are not all like your DS as the world would be a greater place to live. But then where would we be if we were un-able to use wit like that?
I think in heart of hearts you have made a decision that you will never regret, and many mothers on here would agree that your not alone. And our children are proof of what can be acheived.
Take care Annmarie xx