Jacksmum3
04-13-2007, 05:59 AM
Well where do I start lol.
Jack was born on the 10 march 2004, weighing 8lb 9oz a very eventful labour finally I delivered him in 2 pushes, no need for forceps luckily.
But as soon as he was born there was an immediate problem, as he came out his cord had snapped, the midwife realised and quickly clamped the cord and took him to the peadetrician waiting. I meanwhile had to deliver the placenta by myself because it appeared my cord was too short. They measured his cord and it was 14cm long.
They sent me up to the ward after a while but Jack was cold after losing some blood so they put him in a hot cot.
The consultant peadetricican came to see him because the midwives were concerned about his cord. It turns out that about 4-5cm of his intestines were protruding into his cord. So Jack had to go to SCBU.
The next day he was transfered two hours away to Bristol Childrens hospital for surgery.
I was reunited with him later that day. He had his surgery the following day which was a sucsess. A week later we were home.
In the hospital where I delivered Jack they had written in his notes that he had unusual features and very little soft spot, if any? They checked for Downs syndrome. This came back negative.
I was discharged from my community midwife. We had our first visit from my health visitor who straight away was concerned about his head and raised sutures.
She made us an appointment at the local hospital, they ordered Xrays and advised to come back in a months time.
We did just that and saw a different doctor and he said there was nothing to worry about, so we were happy that they said nothing was wrong but i was still worried because the lack of soft spot.
We went back for a checkup a month later and saw the doctor who ordered the Xrays and he then told us that he thinks that Jack has a condition called Craniosynostosis.
He then ordered a CT scan to prove the diagnoses, by the time we got to go for the scan at a different hospital Jack was 4 months old.
The results came back a week later that yes Jack definetly had Bicornal synostosis.
We were then referred to Oxford Radcliff Infirmary, by the time we got to see the PS there Jack was 10 months old. They did thourough tests on Jack and said they would like to do sugery soon and booked him in for the following month.
But low and behold Jack had contact with Chicken Pox, though he did not get them he still had the risk.
Another date was set for April, by this time Jack would be 13 months old.
All was going well, we celebrated his 1st birthday.
We had to do the usual pre op swabs of eyes, nose and mouth and urine test.
He had conjunctivitis in his eyes so they gave us drops for this, but by the weekend he was really poorly with temperature, and I also noticed he was screaming everytime he went to crawl and could not put pressure on his left arm, so he stopped using it.
I took him to A&E (accident and emergency). They did xrays but nothing came back so they assumed he may have dislocated his elbow, so they tried to manipulate it back in but to no avail after 3 attemps told us to wome back in 3 days if no better.
At this point he still had fever. Went back 3 days later still trying to manipulate the elbow back but no use, Jack was screaming I was crying too.
They told us that Jack may have a little fracture that is not showing up.
I could not understand this because surely i would have noticed something?
We were told to come back in 5 days time to fracture clinic.
2 days later he has gotten worse so took him to emergency doctors, they said Jack had tonsilitis and that his elbow was inflamed they put Jack onto the childrens ward.
By the time the orthopeadic docs came to see him there was nothing to see on his elbow so they sent us home.
Went back to fracture clinic, Jack still had a temperature, we walked through the door he asked if Jack still had temp and if he still refusing to use his arm and the aswers to those were yes and he then told me he thinks Jack had got osteomilitis ( a bone infection).
Jack was taken in and put on IV antibiotics, after a few days he was getting better, on the day we was suppose to be leaving we had a phonecall from the doctors that Jack had a very bad urine infection,they came to the conclusion that the osteomilitis started from the urine infection. All this happened a week before his op was planned but he could not have it done until the bone infection was completely gone.
This was a 3 months course of Antibiotics, and of course a month free of them to be sure it has gone. Jack finally 3rd time lucky went in to have his op, he was 17 months old by this time, a whole 13 months after we knew he was to have surgery. You can only imagine the heart ache we all went through?
Well the day for surgery came and he is fit and well, we were allowed to take him to theatre, I was allowed to stay with him as they put him to sleep and I said goodbye and see you later.
We decided that we would go into town and have a nice breakfast and do some retail therepy. We then went to DH Dad's house to have a decent shower and cup of tea, by this time we got our phonecall to say that all went well and Jack was in recovery.
When we got back to the hospital Jack was still in recovery and his PS and NS came to see us to tell us how it all went.
There was a problem when they went in and took his forehead away his brain fell because it was so restricted. But as they were operating noticed that his veins near the brain were bleeding so had to cuorterize them, they said that he had unusually large veins and that he had very few too instead of having about 12 veins he had 5 but now he only has 3.
He lost a bit of blood and had two transfusions.
He came back up on to the ward at tea time, all hooked up to every machine you can think of. They put them in a room beside the nurses station and for the first 24 hours has a nurse with him at all times.
He did very well and recovered very quickly, he was sick for the first 3-4 days, but due to them having to go into the membrane that covers the brain this was inevitable.
He had his surgery on the Thursday and was home by the tuesday.
His scar healed really well and everything was hunkydoory for a while, that is until his behaviour started to get out of hand and the worry of ICP occurred.
He had ICP monitering done In DEcember 2006 which showed slight pressures, but not enough to warrant another op yet due to the seriousness of the last one, they had noticed that he had quite a few dips in his breathing whilst being monitered.
For this we are now waiting for a sleep study to rule out sleep apnoea.
Jack is doing well tho and is starting Pre-school on the 30 april.
I have a homepage too if you would like to see the before during and after op.
I hope i did not bore you and i congratulate you if you have got this far lol.:cheer
Jack was born on the 10 march 2004, weighing 8lb 9oz a very eventful labour finally I delivered him in 2 pushes, no need for forceps luckily.
But as soon as he was born there was an immediate problem, as he came out his cord had snapped, the midwife realised and quickly clamped the cord and took him to the peadetrician waiting. I meanwhile had to deliver the placenta by myself because it appeared my cord was too short. They measured his cord and it was 14cm long.
They sent me up to the ward after a while but Jack was cold after losing some blood so they put him in a hot cot.
The consultant peadetricican came to see him because the midwives were concerned about his cord. It turns out that about 4-5cm of his intestines were protruding into his cord. So Jack had to go to SCBU.
The next day he was transfered two hours away to Bristol Childrens hospital for surgery.
I was reunited with him later that day. He had his surgery the following day which was a sucsess. A week later we were home.
In the hospital where I delivered Jack they had written in his notes that he had unusual features and very little soft spot, if any? They checked for Downs syndrome. This came back negative.
I was discharged from my community midwife. We had our first visit from my health visitor who straight away was concerned about his head and raised sutures.
She made us an appointment at the local hospital, they ordered Xrays and advised to come back in a months time.
We did just that and saw a different doctor and he said there was nothing to worry about, so we were happy that they said nothing was wrong but i was still worried because the lack of soft spot.
We went back for a checkup a month later and saw the doctor who ordered the Xrays and he then told us that he thinks that Jack has a condition called Craniosynostosis.
He then ordered a CT scan to prove the diagnoses, by the time we got to go for the scan at a different hospital Jack was 4 months old.
The results came back a week later that yes Jack definetly had Bicornal synostosis.
We were then referred to Oxford Radcliff Infirmary, by the time we got to see the PS there Jack was 10 months old. They did thourough tests on Jack and said they would like to do sugery soon and booked him in for the following month.
But low and behold Jack had contact with Chicken Pox, though he did not get them he still had the risk.
Another date was set for April, by this time Jack would be 13 months old.
All was going well, we celebrated his 1st birthday.
We had to do the usual pre op swabs of eyes, nose and mouth and urine test.
He had conjunctivitis in his eyes so they gave us drops for this, but by the weekend he was really poorly with temperature, and I also noticed he was screaming everytime he went to crawl and could not put pressure on his left arm, so he stopped using it.
I took him to A&E (accident and emergency). They did xrays but nothing came back so they assumed he may have dislocated his elbow, so they tried to manipulate it back in but to no avail after 3 attemps told us to wome back in 3 days if no better.
At this point he still had fever. Went back 3 days later still trying to manipulate the elbow back but no use, Jack was screaming I was crying too.
They told us that Jack may have a little fracture that is not showing up.
I could not understand this because surely i would have noticed something?
We were told to come back in 5 days time to fracture clinic.
2 days later he has gotten worse so took him to emergency doctors, they said Jack had tonsilitis and that his elbow was inflamed they put Jack onto the childrens ward.
By the time the orthopeadic docs came to see him there was nothing to see on his elbow so they sent us home.
Went back to fracture clinic, Jack still had a temperature, we walked through the door he asked if Jack still had temp and if he still refusing to use his arm and the aswers to those were yes and he then told me he thinks Jack had got osteomilitis ( a bone infection).
Jack was taken in and put on IV antibiotics, after a few days he was getting better, on the day we was suppose to be leaving we had a phonecall from the doctors that Jack had a very bad urine infection,they came to the conclusion that the osteomilitis started from the urine infection. All this happened a week before his op was planned but he could not have it done until the bone infection was completely gone.
This was a 3 months course of Antibiotics, and of course a month free of them to be sure it has gone. Jack finally 3rd time lucky went in to have his op, he was 17 months old by this time, a whole 13 months after we knew he was to have surgery. You can only imagine the heart ache we all went through?
Well the day for surgery came and he is fit and well, we were allowed to take him to theatre, I was allowed to stay with him as they put him to sleep and I said goodbye and see you later.
We decided that we would go into town and have a nice breakfast and do some retail therepy. We then went to DH Dad's house to have a decent shower and cup of tea, by this time we got our phonecall to say that all went well and Jack was in recovery.
When we got back to the hospital Jack was still in recovery and his PS and NS came to see us to tell us how it all went.
There was a problem when they went in and took his forehead away his brain fell because it was so restricted. But as they were operating noticed that his veins near the brain were bleeding so had to cuorterize them, they said that he had unusually large veins and that he had very few too instead of having about 12 veins he had 5 but now he only has 3.
He lost a bit of blood and had two transfusions.
He came back up on to the ward at tea time, all hooked up to every machine you can think of. They put them in a room beside the nurses station and for the first 24 hours has a nurse with him at all times.
He did very well and recovered very quickly, he was sick for the first 3-4 days, but due to them having to go into the membrane that covers the brain this was inevitable.
He had his surgery on the Thursday and was home by the tuesday.
His scar healed really well and everything was hunkydoory for a while, that is until his behaviour started to get out of hand and the worry of ICP occurred.
He had ICP monitering done In DEcember 2006 which showed slight pressures, but not enough to warrant another op yet due to the seriousness of the last one, they had noticed that he had quite a few dips in his breathing whilst being monitered.
For this we are now waiting for a sleep study to rule out sleep apnoea.
Jack is doing well tho and is starting Pre-school on the 30 april.
I have a homepage too if you would like to see the before during and after op.
I hope i did not bore you and i congratulate you if you have got this far lol.:cheer