View Full Version : Hi new here!!
04-12-2007, 06:18 PM
Hi my name is Annmarie and my DS has Bicoronal synostosis. He was born in March 2004 and had surgery in August 2005. He had a frontal orbital advancement. I thought I would come on here to offer any help and also for support myself too.
I am from England, any others from England on here?
I have some pictures if anyone would like to take a look. http://aolpictures.aol.co.uk/galleries/morrispies2
Thanks Annmarie xx:howdy
04-12-2007, 06:52 PM
Welcome Annmarie! We would love any experienced advice! We have a few bicoronal moms on here and a few families from England also.
Jack is adorable. (as is his big sister!) Thanks for sharing the pictures. And again- WELCOME!
04-12-2007, 11:13 PM
Can't wait to get to know you and here your story.
04-13-2007, 06:44 AM
Hello Annmarie it Jacqui & Charlie from the CAPPS site! This site is also brilliant. Just read Jacks story, what an ordeal you went through with your litte man but he is absolutely gorgeous. See you in May x :elmo
04-13-2007, 07:14 AM
Thanks Jacqui i stmbled accross this site so thought I would Join. You will see me in May and i can't wait. Woo hoo !!
04-13-2007, 09:35 AM
Welcome! He is adorable!! :adore we need all the support for each other we can get here! :hugg Thanks for sharing!
04-13-2007, 12:58 PM
Welcome Annmarie! It's so great to have parents who are on the other side join, it is reassuring to the parents new to the journey to see successful stories. Dillon was bicoronal and metopic, had his surgery in 2004. He'll be undergoing another, but we are not sure when. Once agian welcome! I'm off to see your web page...
04-13-2007, 02:25 PM
:welcome Glad you found us, it is great to have more support and advice at the rate Cranio has been growing we need an army of support.
Going to check out your pictures, take care.
04-14-2007, 09:10 AM
Thanks Everyone, hope you all like the pictures?
If anyone need any advice I am more than willing in trying to help.
I am just annoyed that i did not find this site earlier.
Jack has had a rough ride so far so I am hoping he can stay out of the clear for a while.
I have added Jacks story so far on the stories page, I hope you find it interesting and not too much to take in lol.
I had forgotten to say he has had grommits put in ( ear tubes ) but this seems less important if you know what i mean?
Take care Annmarie xxx
04-14-2007, 09:27 AM
Annmarie you have a gorgeous family :icon_mrgr so yes I enjoyed the pics, we love sharing pics here of our babies its like my second family :)
05-12-2007, 12:01 AM
Welcome! I am new here too! Your family is absolutley lovely.
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