View Full Version : Mixed results at 9 months post surgery
01-04-2010, 02:31 PM
Just got back from Cam's 9-month post surgery check up with mixed results and mixed feelings. The back of his head looks great and the sides are continuing to pop out and change, but now there are concerns about the front.
I'll put some photos in later, and Cam is grabbing at me, so I will write more later, but his forehead is still bossy and the words second surgery were brought up. Nothing definite, we are going to wait and see for at least three more months before any further decision is discussed, but oh this just kills me!! I don't know how you ladies who have gone through two surgeries (or more for other issues as well) do it. Just thinking about having to put him thru that again....
So I am feeling sad and worried, which sucks. He turned 1 yesterday and part of me was hoping for better news today, altho I have my concerns as well.
01-04-2010, 02:37 PM
:hugg I'm so sorry you are worried! Those stinkin' bossy foreheads are hard to fix. I know our PS was still concerned about Sophie's when her helmet came off a few weeks ago, he said he still wants to keep a close eye on it. They still have a lot of growing to do, so don't worry too much right now (yeah right, I know).
01-04-2010, 03:22 PM
I'm sorry you got mixed results and are worried about a 2nd surgery. There is another sagital boy on here that had the same procedure for sagital and I believe they are watching his forhead as well.
:hugg I sure hope a 2nd surgery doesn't have to happen!
01-04-2010, 03:31 PM
:hugg I hope that you get good news next time you go.
01-04-2010, 04:03 PM
((((Hugs)))) chick, i know just how your feeling. Josh had a cvr in oct 2007 when he was 6 months old for sagittal. straight after his surgery his temples were so narrow and pinched. when we questioned this with the surgeons they just kept telling us it was normal!!!! in april 2009 i eventually posted pics here and the girls straight away knew what was happening (metopic, trigon). so i emailed dr fearon the photos and he said the same! we were and still are devestated, we pushed our surgeons who eventually listened and scanned him. his old ct scan showed the sagittal completely fused and the metopic partly. so they think it zipped up straight after his first surgery. we are now waiting for a2nd surgery date which should be anytime this month. we are struggling so much at the minute trying to get our heads round it all. Josh will be 3 yrs in may, a difficult age to put him thru another surgery. if u have any worries about your little cuties headshape changing, then pus, push, push. our mummy instincts are always right! im a true believer in that. xx long story but if you go onto my old profile joshuasmummy i have pics in the albums.
01-04-2010, 04:11 PM
You poor thing. That's not what I would want to hear at my checkup and I know you must feel like you're starting all over again. Hopefully things will change and you won't have to go through all that again!
01-04-2010, 04:37 PM
First I just wanna say wow he is SO cute!! As for the bossy forehead....I totally get your concern, I've been there! But as Cameron is only 9 months post-op, I would give him lots of time. My Cam is right around the corner from 2 yrs post-op and he still has a mildly bossy forehead...although he is narrow towards the front too, if that even makes sense. Our problem is an ever-elongating head! uggh. But the bossiness has gotten better over time, and I hope it will for you guys too!
Hang in there. :hugg
01-04-2010, 04:42 PM
Thanks ladies for your replies. I actually asked about the metopic, but our surgeon isn't concerned about other sutures, just that the forehead is still prominent. Hopefully he will grow into it further. There are some pics in my album from this summer where you can see it, I will try and download some more later from this fall. Finger crossed it won't get any worse!
01-04-2010, 06:43 PM
I'm so sorry your appointment didnt bring you better information. Hopefully things will turn out okay and you can avoid another surgery.
01-05-2010, 01:28 AM
oh thats good then that they are not worried about any other sutures. I hope i didnt frighten you. fingers crossed it will sort out with time, which as they sayi is the best healer! xxx
01-05-2010, 08:06 AM
Don't you hate mixed messages???? Sorry you may be facing another procedure.
Hi Kate, I just sent you a message on your profile as well.
Cam is so cute!! Happy birthday, little buddy!
Here is a recent profile pic of Brandt. Still somewhat bossy to me, but I'm being patient. :)
01-07-2010, 08:17 PM
Luckily his head still has a lot of growing in the next year or so hopefully it will all even out and things will be fine...sorry you are concerned...I guess it's just the way this cranio ride works though!!
01-07-2010, 09:13 PM
ugh. so sorry your appt didn't go as you had hoped. I'll say a prayer that everything evens itself out with a little more time and no second surgery is needed. However, if it does come to surgery again, we'll all be here to help you thru it and you know from experience how well these kiddos do. Hugs and hang in there...only time will tell.
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