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Addy
03-21-2007, 03:49 PM
Hi ladies;
I want to firstly thank each and every one of you for your support these past few weeks it helped me survive this dark period in our lives and I will NEVER forget it (((Hugs)))
I got a call from the peds office and Ethan's scan showed no cranio or synostosis and looked normal. I'm breathing a huge sigh of relief, but am still aware we are not out of the woods as our daughter needs to be tested as well so more waiting, but hey I thank god for this blessing. I still have questions about Ethan's head shape and if there is a possibility we can use a helmet still at 22 mos. I will be asking the neurologist these questions at our follow up appt.
I'm so relieved right now and pray Lexi has the same results.
Thx again for your friendships. I will keep you all posted on the next step. (((Hugs)))

sarahanne
03-21-2007, 04:54 PM
What great news, Addy. I can almost hear your sigh of relief from over here! I'm so pleased for you all that Ethan won't need surgery.

When is your neurologist appointment? I'm hoping you get all the answers to your questions. What an anxious time you've had... and are probably still having as you're waiting to hear about little Lexi.

Will look forward to reading your updates.

Smiles all round here.

Sarah x

Lori
03-22-2007, 02:19 AM
Wow, that is great news! I am really glad for you and hoping your daughter's test goes well also. They are just too cute!

KALEMSMOM
03-22-2007, 12:49 PM
I am really glad to hear that he won't need surgery, hopefully you will get the same results for your daughter.

Addy
03-22-2007, 01:56 PM
Thx so much ladies I am so relieved about Ethan. I called the neurologist's office and it's looking like our daughter won't be seen till sometime July! I'm waiting to hear back from the neuro's nurse. I wish she could at least get the scan referral and get that underway. I'll just keep saying those prayers. Thx again for your support :)

Rhonda O
03-23-2007, 08:34 PM
That is great news!!!

Jennifer
03-23-2007, 09:17 PM
Great news! I'm hoping you get the same news for Lexi! Great way to start your weekend. Please do continue to keep us posted!

mom2mykidos3
03-26-2007, 10:20 PM
Congrats. I love to hear the happiness of children that are so blessed. Thanks for sharing your thoughts and I hope you don't leave, even if your child doesn't have cranio.

Addy
03-27-2007, 10:36 PM
Thx so much ladies! It's nice to share the good news with you all and know if it's not so good I have wonderful friends who lend support :)

Heather: I definitely will stick around even if Lexi doesn't have cranio. This place gave me alot when I needed it most and I plan on giving my support back to those going through the same issues even if they aren't sure if it is a cranio diagnosis etc. Also I feel like I've made some great friends here and want to keep in touch and up to date on what is happening in your lives.
The appt for Lexi will be in July then it will be a wait to get a scan. I have NO idea why the ped didn't initially have both kids seen for headshape...probably why we no longer see him. So it's back to waiting to see the neurologist for her. Our son has to have some genetic blood tests done so his follow up on that will be the same appt as hers.
Heather I also wanted to say everytime I see your siggy post it makes me smile your daughter is adorable, as are all the members children!

Matthews Mommy
03-29-2007, 10:19 AM
:wave2 Thats great news I will keep Lexi in my prayers too, now relax mom you deserve it.