Hello

[triplets plus three]

Hello,
I am a return user to this site. My daughter who is a triplet was diagnosed with sagittal cranio last year she is now 8 almost 9. She will be having her surgery this june. We had to pospone it from this jan. due to my husband getting hurt at work and having to have back surgery this coming few weeks. I also became ill and had to have my gallbladder out this past week. She was not diagnosed as an infant even though photos clearly show this. I have a question for anyone willing to give me some answers. We do have insurance through my husbands work, but we were wondering if there is any orginazation who would be willing to help with what the insurance wont cover? We live in northern California. If anyone can let me know of anything I would be greatly apperciative. Thank you and it is good to be back!!
:pepsi

[Jennifer]

Just wanted to say WELCOME BACK! I'm sorry your husband had to have surgery and all the delays occured. How is your daughter doing with the thought of surgery-I suppose she's definatly old enough to know what's going on?

Can't help w/ the extra help w/ medical costs, I'm sure someone will have some thoughts though!

[Katie]

Welcome back! I'm sorry to hear of the recent troubles in your family, I hope both you and your husband are recovering well.
There are a couple of organizations that might be able to help offset the cost of the surgery. You can try the Jorge Posada Foundaiton (http://jorgeposada.com/foundation.html) or the Childrens Craniofacial Association (http://www.ccakids.com/).
Also, most states offer a type of medicaid program for people who already have insurance. It supplements what insurance won't cover, and some states have an insurance for the sole purpose of special needs children and craniosynostosis usually qualifies for it. You can try browsing this site (http://www.bridges4kids.org/states/ca.htm) for programs in California that might help you out. Hope that helps :hugg

[triplets plus three]

Thank you both so much for the replies. My daughter is fully aware of what is to come and cant wait to be "fixed". She spoke directly to the surgoens and expressed her own views and thoughts right along with ours. She is nervous of course but takes it all in stride. Guess her age is sort of a bonus as she knows what is going on and can express her feelins too!! Again thank you, I look forward to chatting with you all again!!

Lisa

[mom2mykidos3]

I know with my insurance I just called them and asked what was covered. We did have an out of pocket deductable limit. Because I had Miriam the same year as here surgery we already had $800.00 of our $1500.00 met. You might want to call yours and just ask what our the stipulations.
I hope it all works out for you.

[Matthews Mommy]

Katie I was saying in my head jorge pasada but then I see you posted that. I am sorry you are facing this type of situation, I will pray for you and your family! My son Matthew had sagittal craniosynostosis too if you ever wanna talk there is always someone on here it's like a big family on craniokids we have all bonded and we are happy you are here.

[Lori]

:welcome