susanna
11-29-2009, 04:55 AM
my son just grew a bump on the top of his head the dr.s haven't done any other test except for an xray I think were wait for a scan. But can some one give me more info? Please.am not too good at checkin at this websit yet...but my email is susanna1721@gmail.com thanks
craniomommynbaby
11-29-2009, 09:40 AM
Hi, Susanna!
I sent you an e-mail, but I thought that I would reply here, as well.
My name is Cindy, and my son Simon was a bicoronal kiddo. I am not sure how much you already know about craniosynostosis, so I will explain it the best I can. Feel free to e-mail me back if you want to know more!
When a baby is born, the skull bones are not joined together yet. They are in pieces so that the baby's head can shift to help the baby go through the birth canal. Then, once the baby is born, the bones do not fuse right away so that the baby's brain has room to grow. In craniosynostosis, fusion occurs too early at one or more of the lines between the skull bones (sutures). There are different names for the lines depending on which way they run. In bicoronal, the lines that run across the top of the head from ear to ear are fused. Since the brain cannot grow out in all direction, it grows perpendicularly to the fusion. So, a bicoronal baby usually ends up with a forehead that is tall and bulging out, and the back of the baby's head is flat. This head shape is called brachycephaly.
The baby's skull needs surgical correction. In our case, Simon had to have his skull reconstructed and his eyebrow bones brought out some. You can check out our journey on our site www.thescofieldfamily.com/craniosynostosis Simon was one of those rare cases that ended up needing another surgery, and you can read about that at www.craniomommynbaby.blogspot.com
I hope this helps! Feel free to stay in touch.
Christina's_Mommy
11-30-2009, 11:36 AM
Beat me to it Cindy! That sums it up well. Welcome to CranioKids Susanna!!
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