Mosaic Trisomy 9

[Skylar's Mom]

After genetic testing due to right coronal cranio they discovered that my daughter has mosaic trisomy 9. apparently it is very rare and the people that do have it are all very different so there really isnt much info. does anyone here have a child or know someone who has trisomy 9, i could really use someone to talk to about this. thanks

[Avery's Mom]

No, but Avery has Trisomy Mosaic 14 and we are in the same boat. He was diagnosed at 2 weeks. I can give you some links to the only website I have found that has much info and if you join they will put you in touch with nay other families who have the same type as your daughter. It is based in the UK but has some great info. It is called, appropriately, Unique.

http://www.rarechromo.org/html/LittleYellowBook.asp

If you scroll down and look under Information and the Disorder Leaflets you should find some info on your particular chromosome. Let me know if you want to chat....