question

[jbanever]

Hi everyone! I joined awhile ago but haven't been on. I have a 3year old son who had sagittal craniosynostosis and had a cranial vault reconstruction in May 05. He has been doing great. I noticed in the past year he was having some speech problems and decided to have him evaluated. It turns out that he is having a hearing problem. His right ear has a mild to moderate hearing loss and his left ear has a moderate to severe deficit. My question is, has anybody had any hearing problems or heard of anything like this happening with a sagittal cranio kid? I should add that he has no other syndrome related to the cranio. I've been trying to look online and can't find anything. Any information you have would be greatly appreciated. I thought after his surgery we would be homefree and now with the hearing...well, I am sad that I didn't pick up on it before. Thanks for any info :icon_mrgr

Jessica

[Katie]

Hi Jessica! I have heard that hearing concerns can be common in cranio kids, but more so in coronal or syndromatic craniosynostosis. Hearing is a hard one to pick up on in toddlers, don't be sad you missed it! A toddler can't say "what?" or tell us they can't hear us clearly, so it can be easily missed. It was quite some time after we realized that Dillon's speech was delayed that his therapists suggested a hearing test. :hugg :hugg

[mom2mykidos3]

Me too. I have heard of cranio kids having hearing problems. My daughter is still to young to really know. But I am sure you will find the answers to your questions.

[Melissa]

Hearing problems are really common with the syndromic forms of cranio, and I'd think they would be with the other forms, as well. My son is 14 and has had hearing issues since he was really little. I had problems picking it up at first, too - I mainly noticed that if he wasn't facing me when I told him something, he wouldn't respond, but if he was facing me he would stare at my mouth when I talked to him. He had basically taught himself to lip-read and I hadn't picked up on it. So don't feel bad - these little guys (& gals) can really do a good job of hiding things from us parents!!!